Itchy skin, scratchy eyes, heat and humidity…. 🤔 - MPN Voice

MPN Voice

10,887 members15,202 posts

Itchy skin, scratchy eyes, heat and humidity…. 🤔

Pachena profile image
3 Replies

Good morning from Brisbane, Australia 👋🏻

I’ve got ET JAK2 pos and have started to get the itchies 😆

I have read that it’s common with PV but I wondered about ET?

I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye is mostly unhappy and I wondered if it may be allergy, just my touchy system as I carry 2 epipens for anaphylaxis (wheat allergy triggered by exercise/heat).

My eyes tend to have dry spots now which I never had before. I had read that the eyes can be affected with an MPN… 🤔

I may be able to get by wearing just one contact lens. I just wanted the contact lenses for occasional use on our holiday coming up.

The weather here may be the cause of the discomfort being so humid, hot and stormy 🧐

I see the optometrist today and will ask before I begin taking Zyrtec regularly again.

Thank you for your thoughts 😃

Written by
Pachena profile image
Pachena
To view profiles and participate in discussions please or .
Read more about...
3 Replies
hunter5582 profile image
hunter5582

Yes, you can get itching with ET. 40% of people with ET in one study. mympnteam.com/resources/itc... Itching is related to mast cell activity - release of hiustamine. This is why meds like Zyrtec can help. Note that histamine release is also related to allergic itch.

Dry eye syndrome is a fairly common problem that can cause issues. I experience it to a significant degree. The only thing that helped is a prescription eye drop called Cequa. My son also has dry eye and opted for punctal plugs. It is definitely something that needs attention.

Hope you have a great holiday.

Spanelmad profile image
Spanelmad

Sorry to here you've got the "itches" not fun at all.keep taking the zyrtec.

Windy51 profile image
Windy51

hi I also have the same problem I also live in Australia on the Goldcoast

Not what you're looking for?

You may also like...

itchy skin

Hi all, I have this terrible itchy skin,mostly arms and legs,after any contact with water,apart...
Nursey30 profile image

Eyes and Chemotherapy

Hi All, After reading Polly PV post regarding her Eye issues, I have decided to write my issues!...
pontygirl profile image

I need advice about taking Hydroxycarbamide

I’m 70 years old and just been diagnosed with ET Jak2. I’ve been put on 500 mg of Hydroxycarbamide...
Zoebowie profile image

Vitality - Serious Illness Cover

Hello, I have read previous posts re Critical Illness Cover policies and noted the specific...
Shanders profile image

Itchy skin problem

Dear all, i haven't been here for long time, have been looking after my sister she has incurable...
Lifam profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.