MPN and secondary cancer

[Vladimir1]

Hi Everyone,

Diagnosed ET Nov 2023, currently taking daily aspirin and Hydroxy 500mg. I also have Hashimoto’s.

Recently discovered lump in my breast, now have referral to hospital for further investigation. Fingers crossed it is a benign cyst. Just wondering if anyone else has experienced secondary cancer to their MPN?

[RazB]

Hi Vladimir1, I’m sorry to hear about your breast lump, that sounds worrying for you but as you say hopefully it’ll be a cyst /benign lump. I too found a lump 3 years ago and saw someone about it (twice), was told it was a cyst. Fingers crossed for you, please keep in touch and let us know how you’re doing with it. Hope you’ll be seen quickly. X

[Vladimir1 in reply to RazB]

Hi RazB, Thanks you for your reply. Yes, I am not going to over think the what if, that just wastes precious energy. I will keep in touch. I so appreciate having this forum where we can share our experiences. Take care 🙂

[CraftySpider]

Hi Vladimir1, yes, I have MF and discovered a tiny lump in my left breast last Summer…it turned out to be Inasive Ductal Carcinoma Stage 2. Luckily I found it early and it hadn’t spread…now still recovering after having radiotherapy in December. Good luck, I hope your is benign.

[Vladimir1 in reply to CraftySpider]

Hi CraftySpider, thank you for sharing and so thankful your cancer was found earlier. I have fingers crossed.

[Leveret20]

Hello Vladimir1, this might be too technical, but if it helps put your mind at rest, a breast lump will not be a secondary cancer from your MPN. An MPN is classed as a cancer because too many blood cells are made, but the extra cells are normal, and not cancerous themselves, so they won't spread and make a secondary cancer elsewhere in the body. There is a very low frequency of progression to leukaemia, way down the line, but not of solid tumours. So whatever this lump is, it is separate from the MPN.

This is a worrying time, good luck, and remember most lumps are benign. I do hope that this is the case for you.

[Vladimir1 in reply to Leveret20]

Hi Leveret20, thanks for sharing your knowledge. You couldn’t have explained this better. I am very new to this MPN journey and have much to understand and learn. Fingers crossed.

[MaggieSylvie in reply to Vladimir1]

Yes, I was diagnosed with MDS/MPN about four years ago and was told at the time that this cancer with a small c does not spread, so you won't get secondaries. I've got too few red cells and too many platelets, though I really dont see what all the fuss is about because my platelets are only just outside the range!

[Camelian]

Hi VladimirI have PV and was diagnosed with low grade lymphoma following a BMB. Both conditions are managed by the hematologist I'm on watch and wait for the lymphoma and aspirin and venasection for the PV. I recently found a lump in my breast and had 2 mammograms and luckily it was nothing sinister. Try not to worry although I know from experience that's not easy. Take care and remember as said in another reply most lumps are benign ,good luck.🤞

[Vladimir1 in reply to Camelian]

Hi Camelian, thank you for your reply and well wishes. It is hard not to worry, however I feel I am managing this well, by staying busy and not living inside my head. What ever the result, I can deal with that when I know.