Update 7.7.5 = Benign: Thanks to all who responded... - MPN Voice

MPN Voice

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Update 7.7.5 = Benign

hunter5582 profile image
46 Replies

Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed.

Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone not to neglect a new growth on the skin. We are all at risk for secondary cancers, particularly when on certain medications. It is much better to be safe than sorry. I have an annual skin check by a dermatologist for the same reason. Catching something early is a very good idea.

Wishing all of you all the best.

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hunter5582
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46 Replies

so glad you got good news, Hunter!

Lyndjs profile image
Lyndjs

Thank you for the update. So happy to hear your news x

MaggieSylvie profile image
MaggieSylvie

Oh, that is good news, hunter! And all gone? It must be. Congratulations.

April-May profile image
April-May

brilliant news Hunter - so happy for you. Congratulations

Cja1956 profile image
Cja1956

Great news!

Spanelmad profile image
Spanelmad

Good news Tuesday continues!!!

Mostew profile image
Mostew

Always good to hear your updates , We can' never throw caution to the wind, ' as they say.

Warm wishes to you

azaelea profile image
azaelea

So glad to hear your good news, Hunter.

Cokopops profile image
Cokopops

That’s good news! Keep well

socrates_8 profile image
socrates_8

Hey Steve...

Sorry to learn that you've had a few concerns of late, but also very happy to hear that the news is of a positive nature...

Best wishes buddy...

Steve

(Sydney)

AndyKay profile image
AndyKay

Hunter, this is wonderful news.

Patso52 profile image
Patso52

Hooray!

Elizka profile image
Elizka

I have never had skin cancer or pre cancer, but I get my whole body checked out every year. I have had a few red spots, and pigmentation removed with laser. Next year, I'm getting full face deep resurfacing done to my whole face. Mostly to reset my skin back a decade or so, but also to remove any precancers lurking but not yet visible. My client does it. (This is not me, but a patient of his that gave person to share. )

Before and after of RESET procedure.
PhysAssist profile image
PhysAssist in reply to Elizka

Hi Elizka,

Thanks for sharing that!

Any idea how much it costs, and whether it is ever covered by insurance?

I had a BCC removed this June, so if I could have a procedure that would remove anything even remotely likely to progress from early pre-cancerous to malignant, I'd drop everything to get it done.

Thanks again, and good luck with life, the universe, and everything...

PA

Elizka profile image
Elizka in reply to PhysAssist

Hi there,

It is not covered by insurance and the cost for upper lids, lower lids and the full face is approx $23K. Less if you aren't doing the eyelids.

It removes any pre-cancers. My husband had it done a few years ago Dr. Scheiner found about 7 pre-cancers.

Thanks!

PhysAssist profile image
PhysAssist in reply to Elizka

Hi Elizka,

Thanks for the helpful response.

I find it sad that we have to wait for the cancer to reveal itself before insurance will cover it, vs. preventing that outcome preemptively.

Best regards,

PA

PegSue profile image
PegSue

That is good news indeed.

ostiad profile image
ostiad

Great news.

gilded profile image
gilded

Good news. As the Scots say “ lang may yer lum reek”.

PhysAssist profile image
PhysAssist in reply to gilded

Translation:

"Long may your chimney smoke"- because inquiring minds want to know...

Best,

PA

Grendall profile image
Grendall

that’s a great result Hunter,

so glad you are ok, enjoy the festivities now 👍

LittleLuna profile image
LittleLuna

Happy you have had good news on this biopsy. Always a stress waiting for news.

Have a fab day Hunter

Booagain profile image
Booagain

Great news Hunter!

ABPD profile image
ABPD

Great news Hunter

Gaithersburg profile image
Gaithersburg

That is fabulous news, Hunter. Thanks for letting us know.

Kilmichael profile image
Kilmichael

That is wonderful news 🙏🏽, and Thank you for being such a great help to us all on this forum .

jointpain profile image
jointpain

Oh that's good news, on the downside you might be expected to buy Christmas presents 😱 All the best for the future.

Anag profile image
Anag

Hurray! That’s great news. 😃

Teachme85 profile image
Teachme85

Great news Hunter. I go every six months for checks because of previous removals. Living in Arizona ups the chances of skin issues.

ainslie profile image
ainslie

Congrats, I love to hear that word benign, agree skin

checks 9-12 month’s or more often if concerned

KLCTJC profile image
KLCTJC

yeah!!!! Happy Thanksgiving

Anouchka profile image
Anouchka

Great news, Hunter! Happy for you; thanks for the update and good advice.

Tipsy2023 profile image
Tipsy2023

Good news .. that’s great Hunter

saltmarsh profile image
saltmarsh

Congrats. Now enjoy your Thanksgiving

PhysAssist profile image
PhysAssist

Great to hear you've been cleared for that one!

...and great general advice as always.

I'm up [from annual skin exams] to skin checks every 6 months now since the BCC diagnosed this past spring [removed via Mohs in the summer].

Happy Thanksgiving to all- I'm thankful for all [well most] of you!

Best,

PA

mbr8076 profile image
mbr8076

Glad to hear it was benign:) I have a first dermatological visit in early December for some sores on my head and will discuss the use of Hydroxyurea for the past six years. Thank you for the encouragement for a yearly visit.

Poppy6060 profile image
Poppy6060

Hi that is good news and happy thanksgiving

hsdale3 profile image
hsdale3

Hunter, glad to hear your good news!

You replied to my recent post (I am recently diagnosed with MPN, and posted some questions). Don't know the exact form I have yet, and have been researching about the disease. Particularly the drugs used to teat it. I have been reading articles about treatment with interferon and wondered what your thoughts are about interferon vs the other drugs:

HU

Ruxolitinib

ETC?

Thanks,

hsdale3

hunter5582 profile image
hunter5582 in reply to hsdale3

I responded much better to the interferons, Pegasys and Besremi that to the other treatments I tried for the PV. I was both refractory to and intolerant of hydroxyurea. Phlebotomy-only worked for a while, but the side effects of the phlebotomy-induced iron deficiency were worse than the PV symptoms.

There is emerging data on the ability of the interferons to be disease modifying. My JAK2 allele burden has been reduced from 38% to 9% (as of Dec 2022). I am about to repeat the JAK2 Quantitative Analysis and am hopeful it will me even lower. Perhaps I will achieve a complete molecular remission. I also feel better now than when I started on the IFNs. In fact, I feel better now than I did 10 years ago.

Note that this is my experience. We are all different in how we respond to the medications used to treat MPNs. You cannot use my experience to predict how you would respond. There is very good data on Ruxolitinib. It is a viable treatment that may also reduce JAK2 allele burden. Some people tolerate it better than the IFNs.

Wishing you all the best as you move forward.

katiewalsh profile image
katiewalsh

Hi. I’ve not been on the site lately so didn’t know about your growth. So happy for you it’s benign. Katie

Jazzyb50 profile image
Jazzyb50

Good news Hunter! Always best to get checked. I have a previous history of malignant melanoma and two basal cell carcinoma's.

JAB6 profile image
JAB6

Great news Hunter! Happy Thanksgiving!

Jelbea profile image
Jelbea

So glad to hear your good news. I had been thinking of you as I have an actinic keratosis turn into a basal cell cancer. It is on my left temple and is being excised on 4th December. I have had many AKs all treated with freezing and this is the first to progress. You are right - it is so important to keep a good check especially when on these strong medications.

Good wishes

JustKeepSw1mming profile image
JustKeepSw1mming

Very glad to hear about your good news, Hunter!!

shiftzz profile image
shiftzz

Great News

Mirror368 profile image
Mirror368

Good to hear your great news!

Eileen

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