hello

[rmfisch]

I am new to this community having been recently diagnosed with PV. May I ask about Dr Harrison and where does she practice? I am being treated by general hemonc in Los Angeles.

Thank you

[Cat_lady52]

I believe she's at Guy's / St Thomas hospital, London UK.

[hunter5582]

Hello and welcome. It is a very good idea to consult with a MPN Specialist rather than a regular hematologist. Here are a couple of lists for the USA.

mpnforum.com/list-hem./

pvreporter.com/mpn-speciali...

[rmfisch in reply to hunter5582]

thank you hunter5582. much appreciated.

[Ginestragiallo61 in reply to hunter5582]

Good morning to all of you on the forum, I am not new to this group, I am Italian and have been here for a few years. Here on the forum I find many useful ideas and news for monitoring my polycythemia vera, after 4 years of therapy with Hydroxiurea since last year I am under treatment with Besremi and I feel quite well despite the extreme tiredness and bone pain, but I no longer require bloodletting, which used to be monthly. I would like to please ask Hunter if he could point me to a specialist here in Italy, specific for myeloproliferative diseases, because I am now following the international protocol but I am followed by the hematology department of a public hospital. Here in Italy, fortunately for us, also drugs such as Besremi or Jakavi are paid for by the National Health Service, as is healthcare. Thanks again and congratulations for the skills made available to the members of the Forum, and for your kindness

[hunter5582 in reply to Ginestragiallo61]

The list of MPN expert doctors we normally use does list any in Italy. mpnforum.com/list-hem./

The one MPN expert doctor I know of is Dr. Tiziano Barbui. I believe he is with Div. Ematologia, Ospedali Riuniti di Bergamo, Bergamo, Italy. I have heard him speak and he is a doctor I would go to see if I was in Italy. Perhaps others on the forum can make recommendations.

I am glad to hear that you were able to access Besremi and are doing well on it. I have also had a very positive experience with it. It has been more effective and easier to tolerate than any other treatment option for PV.

Ti auguro tutto il meglio amico mio.

[Ginestragiallo61 in reply to hunter5582]

Thanks for all!and for your whishes,all the best!but..I'm a woman!thank you so much again

[Wyebird]

Welcome. Professor Harrison heads a team practises at Guy’s Hospital London.