SCT update

[SRH55]

I’ve not posted for a while.

I’m now on day +89 after my SCT,

recovery is taking a while but I’m managing to do a bit more every few days, then I have a ‘tired day’, when I have to listen to my body & have a chill.

My family have been looking after me so well, don’t know what I’d have done without them.

Sending best wishes to you all,

Shirley

[Mazcd Partner MPNVoice]

hello Shirley, amazing, well done, glad to hear that you are doing ok, and very sensible that you are chilling when you need to. Sending you lots of best wishes, Maz

[SRH55 in reply to Mazcd]

Thank you

[hunter5582]

Glad to hear that you are doing OK. It is great that you have family support. Wishing you all the best and continued recovery.

[Wewo01]

That is fantastic! Thanks for letting us know how you are doing. Sending you light and healing vibes! 💕

[SRH55 in reply to Wewo01]

Thank you

[Cja1956]

So glad to hear you’re doing well. I know it’s a very tough process.

[SRH55 in reply to Cja1956]

It certainly is at times.

[champ30]

So pleased you're doing well.... wishing you all the best....Lynn

[SRH55 in reply to champ30]

Thanks

[william-Indo]

Hi shirley,

It is great you have family to support and taking care of you.

Wishing you speedy recovery

Cheers

[SRH55 in reply to william-Indo]

Thank you.

[Wyebird]

Fantastic news keep the updates coming.

As for your family, give them a Pat on the back from me.

[SRH55 in reply to Wyebird]

Will do, they deserve it!

[Bullace]

I am so glad you are recovering from this very tough process. I wish you and your family all the very best. Hilary

[SRH55 in reply to Bullace]

Thanks

[LT55]

Thank you for the update. Wonderful to hear that you are doing better every day, even if it is a slow path. I suspect and hope that the progress over the next 89 days will be even greater!

[SRH55 in reply to LT55]

I hope so too, sure it will be.

[Meatloaf9]

So glad that you are making progress and doing well. Thank you for sharing your journey. Continued success to you. Best always.

[SRH55 in reply to Meatloaf9]

Thanks

[Solyesh]

Shirley - that is great! One day at a time!!

[SRH55 in reply to Solyesh]

Yes, it is.

[westlieght]

Keep strong , am MF but not advised for SMT.

[westlieght in reply to westlieght]

SCT

[SRH55 in reply to westlieght]

I was post ET MF with MPL mutation. I’m having a BMB next week to see how things are going. Have you thought about a SCT?

[Bluetop]

So good to hear. Best wishes for the rest of your recovery.

[SRH55 in reply to Bluetop]

Thanks.

[JediReject]

Hey Shirley , , so pleased you're making decent progress and getting terrific support from loved ones which I think really important. No doubt as t'other Chris (the legend Harper) with the Princess Leia cells would tell you the process and varible recovery is much more a marathon rather than a sprint which I'm sure you appreciate and somewhere down your time line things will become much easier to cope with. I hope that you continue making well deserved steady progress.

Kind Regards - Chris x

[SRH55 in reply to JediReject]

Hi Chris,

Thanks, things can be difficult sometimes, I knew they would be, but I am making progress, but like you say it can be more of a marathon than a sprint.

Best wishes

Shirley

[MFBMT2011]

Chris took the words right out of my mouth. Just keep moving on. Exercise whenever you can, small steps getting bigger. Best wishes from Argentina where I am at the moment.

Chris

[JediReject in reply to MFBMT2011]

Sorry I stole your thunder my friend. Old business saying was copy with pride as long as you acknowledge your source. Enjoy the argy bargy in Argentina!

[MFBMT2011 in reply to JediReject]

Pleasure to read your contribution. We are a team that will meet one day.

[SRH55 in reply to MFBMT2011]

Hi Chris,

Enjoy Argentina.

Shirley

[UKZA]

so glad to hear that you are doing well and have such a caring family. Sending you well wishes. Penny

[SRH55 in reply to UKZA]

Thank you.

[Mrs_Average]

So glad you are making steady progress and sounding very positive.. love your thinking on chill days !! Keep listening to your body and cudos to your family for all the support they are giving you ❤️

[SRH55 in reply to Mrs_Average]

Thank you.

[mhos61]

Best of wishes Shirley. You’re doing great, and will be an inspiration to many. X

[ETinNYC]

So great to have an update Shirley. I hope you continue to improve and get stronger with each passing day. Best wishes to you. Xx

[SRH55 in reply to ETinNYC]

Thank you.

[Aneliv9]

Thats Very good news! Enjoy it! May i ask what was the toughest thing with SCT? Also this procedure makes you lose bair temporarily?

[SRH55 in reply to Aneliv9]

Sorry for my late reply.

My haematologist said that a SCT was my best option, it was a big decision. I won’t lie, it is tough, the worst part for me was the sickness after the chemo & feeling so weak BUT I’m sure everyone is different. I did loose my hair, when it started coming out the nurses shaved it off for me, I brought a cotton hat. Loosing my hair didn’t bother me like I thought it would & it is growing back now. I had really good care in hospital the doctors & nurses were brilliant & so caring.

Are you being considered for a transplant?

Shirley