Hydroxycarbamide sight: does anyone know if HU can... - MPN Voice

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Hydroxycarbamide sight

130396 profile image
11 Replies

does anyone know if HU can affect vision ?

If so, in what way?

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130396
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11 Replies
Lasbrisas1 profile image
Lasbrisas1

Yes it Does, eat eggs and Figs.

130396 profile image
130396 in reply to Lasbrisas1

in what way? What are the effects on vision ?

Otterfield profile image
Otterfield

I don't know but if you have developed a vision problem please see an optician as soon as possible.

130396 profile image
130396 in reply to Otterfield

I’ve seen an optician already. Field vision resukts abnormal

kiwitraveller profile image
kiwitraveller

I go for an annual opticians check up and he told me because of the Hydroxy I had to have an ocular test each year as it can impact on your eye sight.

130396 profile image
130396 in reply to kiwitraveller

what’s involved with an ocular eye test?

kiwitraveller profile image
kiwitraveller in reply to 130396

they put drops in your eyes to enlarge pupils - you have to wait 30-60 min for that to work then go back and they check through a machine. Cost me $25NZ so not going to break the bank and better tk be sure. My optician just told me that the Hydroxy could create problems and that I needed to have this extra check up with my annual visit. I can’t find eye issues online but better to be sure than sorry.

130396 profile image
130396 in reply to kiwitraveller

I’ll ask my optician when I go on Thursday

saltmarsh profile image
saltmarsh

I'm 76 and have been on hydroxyurea for 2 years. Recently had an eye exam by an opthamologist and she found no changes from 2 years ago. I will note that my vision is not as good in the evening - whether it's reading or watching tv and that is different from 2 years ago but I guess it could also be age related.

rustler35 profile image
rustler35

I have been taking 1 gram daily for over 5 years and have not experienced any change in vision or vision issues.

Jimbosan profile image
Jimbosan

I use a small amount only 500mg four times per week. I have not associated any vision issues with hyd. I do wake with blurred vision secondary to my MPN. It improves by mid morning. I believe it is a symptom many have. Good luck.

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