Claire Harrison

[Janis12]

Hi, I know some of you have contacted Claire Harrison to get second opinions etc and I wondered if someone could furnish me with her email address. Many thanks.

[Mostew]

To get a referral you need to ask gp or your hospital to write. Hopefully they will be happy to , .

[Janis12 in reply to Mostew]

Thanks for that info. I was sure some people on this site had emailed Claire directly despite not having been referred by their doctor or consultant, but perhaps I got that wrong, I feel a bit uncomfortable about this but we have to look after our own interests.

[Mostew in reply to Janis12]

I do understand. Phone contact for Guy's Haematology Department is 020 7188 2000

They will advise . And are helpful

Good luck

Treatmen

[Exeter21 in reply to Janis12]

Yes Janis I contacted myself as Dr wouldn’t refer as said it was up to Haemotology to do so . They were not forthcoming as seemed to think I was not happy with them. They were fine but stubborn to consider new drug as other ruined my health. Professor Harrison’s secretary will still ask for a referral. I returned to Dr & insisted on opinion re my drug treatments as yes all our bodies are different & mine hates drugs 🙈. Ring Guys Haemotology they will advise 👍

Julia UK .

[RubyTea in reply to Exeter21]

This is such an incredibly helpful post. Thank you as I have been wondering the exact same thing.

[Janis12 in reply to Exeter21]

Thanks Julia, that gives me a good start. As yet I have not plucked up courage to ask current consultant for a referral, I was just a bit concerned when I asked about transferring to an interferon he advised 'it wasn't used much these days'...really, that's not the impression I get. Due to see him (or someone) in six weeks time to talk about the options again.

[Exeter21 in reply to Janis12]

Ha he sounds totally uneducated on MPN treatment. Read up on Peg Interferon the results are excellent. He is remembering the old drug not the current one . So sad that consultants don’t educate on rare blood diseases like ours. I had same situation & some of my Drs had never heard of the complaint or how it was treated. Claire Harrison is the expert & time our UK Drs got educated on current progress on MPN treatment. Also it is for your own benefit to get advice as I was put on Hydroxy when really my platelets were not high. The drug had horrendous effects on me . Hence I stopped it. After that I read everything on all drug possibilities & got second opinion with a phone consultation from Professor Harrison a wonderful knowledgeable person . Good Luck Julia . PS don’t feel bad about asking a consultant to refer you as it’s your health & a good consultant likes another opinion .👍

[Janis12 in reply to Exeter21]

Thanks, my mission next week is to give Guys a call. Even if my consultant decides to try interferon I feel I would have my confidence with a specialist MPN when it comes to working out the dose etc ...watch this space!

[SoledadBarcelona]

monash.edu/medicine/sphpm/g...

researchgate.net/profile/Cl...

mpnforum.com/d-claire-harri...

Tweeter also

[ainslie in reply to SoledadBarcelona]

the monash one link you provided is a different Clair Harrison, see photos 😀

[SoledadBarcelona in reply to ainslie]

O.K. I will check again or you dont need.