Vertigo and ET?

[Garstongal]

Is vertigo a symptom of ET by any chance?

[hunter5582]

The short answer is yes. You will hear from others who have experienced dizziness/vertigo.

[Pachena in reply to hunter5582]

Ah I wondered as I can roll into a wall and wonder what caused that.

[ainslie]

yes unfortunately, with all MPN’s,I get it from time to time, better now my counts are all normal, if it’s having a bad spell I go for some Epley treatment which helps, it can also be done at home, best to get a proper diagnosis and treatment recommendation first though

[Garstongal in reply to ainslie]

Thanks for your reply. How do you get access to the Epley treatment? My doctor diagnosed mine as positional vertigo so the Epley Manoeuvre could possibly help and although the GP mentioned it he didn’t offer it!

[ainslie in reply to Garstongal]

a ENT doc is is the first thing I did and he has a nurse who does and shows how to do Epley. I got it privately but its maybe available on the NHS if you can wait long enough. I hope that helps

[endlessfun in reply to Garstongal]

WEb MD has good info on the epley maneuver. Easy to follow. I use it a lot and it controls my vertigo.

[Mirror368]

I had a first ever vertigo attack after being diagnosed with ET JAK2. It happened a few weeks after starting Hydroxyurea 500 mg daily.

A friend has vertigo attacks. She mentioned buying Meclizine 25 mg…an over the counter med for vertigo.

Eileen

[mhos61]

Yes, I had bouts of vertigo and scintillating scotoma before diagnosis six years ago. However, once the medication kicked in (aspirin/hydrea) it disappeared. Haven’t had an event of either since.

[Garstongal in reply to mhos61]

Thanks for the reply. I’ve just suffered a bad bout of it and just on the off-chance I thought I’d ask whether it could be a symptom. Rather relieved that I’m not an isolated case (although I wouldn’t wish it on anyone…horrid!

[mhos61 in reply to Garstongal]

Are you on meds and if so, are you responsive? Your vertigo may or may not be associated with your MPN, but a lot of us have experienced it.

Hope it clears up soon!

[Garstongal in reply to mhos61]

Thank you. Yes, I am on aspirin and Hydroxy but the Hydroxy doesn’t appear to be working (even though I’m on 1500mg daily), so the haematologist is now considering either Peg Interferon or Anagrelide as an alternative.

[mhos61]

That makes sense. It’s quite possible the vertigo is related to your blood counts not being controlled.

Three hydrea a day with no reasonable response needs addressing. Hopefully, you’ll have more luck with a change in meds!

Best of luck

[EPguy]

As mhos61 said, your blood counts may be related. When I got to CHR on HU my vertigo got better. I think I may also have had small TIA's at that time.

Hoping your good results on the alternate therapies.

[givingITMybest]

Oh, YES! Before my diagnosis which took 5 doctor and 2 natural path visits I had begun falling to the ground, always to the left. I would get this strange feeling and felt pulled down. I had started a baby aspirin on my own and I think that helped. Our journeys are all a bit different different.