Thank you contributors

[Scaredy_cat]

As you know I've moved from mpns to a sct and tried to find an appropriate forum like this. One on Facebook I looked and tried to use in the same way as this one was awful- nothing factual, science based, new research etc in fact the opposite of this one. A lot of that is thanks to you. So we'll done

[hunter5582]

This forum is wonderful for both facts and support. We are all fortunately to be here to share our experiences and knowledge and to support each other.

[Exeter21]

never mind you can keep coming here for a chat 👌

[KLCTJC]

You are so right. I find myself coming to this forum to just double check my doctors!😆 They have helped me and reassured me. I agree that you should come back and start a conversation anytime as none of us know if we are going to need a SCT and your information may help many of us. They are perfecting that process and using SCT for newer things these days. I saw a current study for SCT for MS. Just another thing that proves my diseases may crossover. So your input will always be appreciated.

[Otterfield]

I remember that you are also on the Anthony Nolan forum, which is great for information on, for example, GVHD and general SCT matters. However, it's a big forum and covers many different blood cancers. I find the MPN Voice forum brilliant for support and somehow more personal. I recognise names here and feel as if fellow members are friends, even though of course we have never met. There are several members who have had an SCT who have been really helpful to me over the last year.

[merlisa]

Hello, I'm also facing SCT, I have been suffering MPN more than 10 years, and these year i have ASXL1, no idea on it. I'm very worry on it and no honor from family. and lack of money as well.😭

[Otterfield in reply to merlisa]

Very best wishes for your SCT. It's risky and really tough but if you are otherwise in good health there is a good chance that you will do well. Quite a few of us in this group have been through it. Best wishes, Jennie

[Scaredy_cat in reply to merlisa]

What country are you in and your age please? Will your sct be paid for?

[merlisa in reply to Scaredy_cat]

China, I have insurance. but it still needs lots of money.