MPN Patient Bill of Rights

[hunter5582]

From our friends at the MPN Research Foundation.

Beyond their laser focus on a patient's diagnosis and treatment, clinicians can be instrumental in educating patients so they better understand the complex information presented to them and their right to ask questions and make choices.

Clinicians: Please share this important document Patient Bill of Rights - MPN Research Foundation with your medical practice team members and other appropriate patient-facing colleagues. Encourage patients to read it and share it with friends and family members.

Patients: Bring a copy of this document to your doctor's office. Ask if they can make a copy of it (or share a link to it) to make it available as a resource to other MPN patients. You can also make it available in a hospital's medical library that has patient access, send it to other patients you know, or share it online or with your support group.

mpnresearchfoundation.org/w...

[Arnoldthecat]

Hello Hunter. Would this be applicable in the UK?

[Otterfield in reply to Arnoldthecat]

Apart from the reference to insurance, it seems like the document would be a good guide.

[hunter5582 in reply to Otterfield]

This would be a good guide anywhere. One could just substitute "health care system" for "insurance" and it works the same in any country. While it is implied, I think the thing that is missing is about having the right to be informed of all viable treatment options and the risks/benefits of each choice. I would also clarify the right to choose your own provider and to change providers when you wish.

[hunter5582 in reply to Otterfield]

I think these principles would apply anywhere.