From our friends at the MPN Research Foundation.
Beyond their laser focus on a patient's diagnosis and treatment, clinicians can be instrumental in educating patients so they better understand the complex information presented to them and their right to ask questions and make choices.
Clinicians: Please share this important document Patient Bill of Rights - MPN Research Foundation with your medical practice team members and other appropriate patient-facing colleagues. Encourage patients to read it and share it with friends and family members.
Patients: Bring a copy of this document to your doctor's office. Ask if they can make a copy of it (or share a link to it) to make it available as a resource to other MPN patients. You can also make it available in a hospital's medical library that has patient access, send it to other patients you know, or share it online or with your support group.