any similar experience?: Hello friends, I did a... - MPN Voice

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any similar experience?

Yarw profile image
Yarw
7 Replies

Hello friends, I did a chest X-ray following a bad flu to check for pneumonia which I didn’t have. The x-ray showed a prominent pulmonary artery. My doctor suggested doing an echo which showed a prominent artery as well. I have zero symptoms and I run everyday 7k! I’m scheduled for a CT scan to see what’s going on. Anybody had a similar experience? When I google prominent artery, I get horrible scary results. I have PV since 2018, I’m a low risk patient and do a phlebotomy once per year. My doctor is an MPN specialist.

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Yarw profile image
Yarw
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hunter5582 profile image
hunter5582

I did have some similar finding bt it turned out not to be pulmonary hypertension. I did receive a very through evaluation, everything except for the catheterization/measurement. Hopefully this ill turn out to be a tempest in a teapot as it was for me. It is quite undertakable that you are concerned. The diagnostic testing will take some time. Meanwhile, hang in there and know that you are not alone.

Yarw profile image
Yarw in reply to hunter5582

thank you so much Hunter for your feedback! Was your pulmonary artery prominent as well?

hunter5582 profile image
hunter5582 in reply to Yarw

There was small apparent enlargement. The short version is that nothing was wrong, just mine appeared a bit bigger than usual.

Yarw profile image
Yarw in reply to hunter5582

Thank you, Hunter! This is reassuring.

light profile image
light

Sorry to hear that unfortunate discovery for you. Will have you in my prayers and you dig deeper till you find what is going on. Keep us updated with your findings. Wishing you well.

Yarw profile image
Yarw in reply to light

thank you so much for your nice message. I will for sure

Mishie14 profile image
Mishie14

My experience is similar to Hunter's and I hope yours--something appeared not quite right in an x-ray but until you go through some further tests it may not be clear what it is, why it is and what to do or not about it. We're all the same but different is what one of my doctors says. I also had no symptoms, no cardio in my or my family's history, no reason to believe anything was actually wrong but needed to prove it one way or another. I found out I do have hypertension as determined by the cardio CTscan. The heart catheter test, heart ultrasound and cardio stress test were assessed to be normal. I continue to have periodic EKG's as a precaution, take low dose blood thinner and blood pressure pills as prevention in my overall ET treatment program--some ET drug side effects involve cardio. The catheter test required being in the hospital because it requires general anesthetic and possible surgery should a repair such as a stent be required. The other tests were done at my cardiologist's clinic over about 5 weeks due to scheduling. Easier said than done is don't worry until you have something real to worry about. Try to stay positive and as has been noted, you are not alone. Good luck.

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