Cold leg and foot: I am on my and the last few... - MPN Voice

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Cold leg and foot

ciye profile image
ciye
3 Replies

I am on my and the last few days I have been getting a really cold leg and foot both much paler than the other. I know it definitely not a clot that would be hit and swollen. I am also testing fluid, I will contact nurses on monday... It just seems odd.

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ciye
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hunter5582 profile image
hunter5582

It is definitely not something to be ignored and should be followed up ASAP. There can be a number of causes, including Peripheral Artery Disease, Peripheral Neuropathy, and more. Here is a bit on that.

usavascularcenters.com/blog...

cvmus.com/blog/why-one-my-l...

If the limb becomes acutely painful, then immediate intervention is critical.

teachmesurgery.com/vascular...

If the onset was sudden, I would make it a point to notify the hematology on-call immediately or simply go to an urgent care center. If the symptom seems to be progressing or is bothersome, then seeking immediate care would also be a good idea. This could be something very minor but it really is best not to make assumptions in the context of having a MPN.

Hope you get to the bottom of this soon.

ciye profile image
ciye in reply to hunter5582

Thank you, will definitely get checked out asap

RCBr profile image
RCBr

Hi,

I had something very similar happen to my left big toe and the side of my foot priority diagnosis of PV ....extremely cold and pale x.....Once I'd seen the consultant I was prepped for starting hydroxycarbamide. I think they thought I was a higher risk of clotting x

It's resolved no I've been on treatment for the condition x

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