platelets low: hi all. I have ET and last few... - MPN Voice

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platelets low

Yasmin86 profile image
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hi all. I have ET and last few blood tests my platelets are getting lower. Has anyone else experienced this please

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Yasmin86 profile image
Yasmin86
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9 Replies
EPguy profile image
EPguy

Are you taking any medication to lower your PLT? Has that med or dose changed recently?

I see were Dx 6 years ago. What numbers have you had in the last few tests?

SammieLou profile image
SammieLou in reply to EPguy

HiI follow ET groups on Facebook and when your platelets lower fast it could be a sign to get more tests to make sure all is in order

Hope all is ok

Please don’t worry, mine dropped 850-600 by eating well so it might be a response to diet & lifestyle changes

Sam

hunter5582 profile image
hunter5582

It depends on what you mean by lower. PLT can routinely cycle by 100k in a single day. My PLT cycled by as much as 200 from time to time. It also depends on whether you are taking cytoreductive meds. There can be other factors as well. Ultimately it is the trend over time that matters.

Ratton profile image
Ratton

Have been taking aspirin and Anagrelide for 2/3 yrs and my platelets are now 250-(down from over 700 some time ago).Have also been told to cut dose of anagrelide -which am pleased to do.

Regards

Ratton726

Wyebird profile image
Wyebird in reply to Ratton

That’s fantastic news

Yasmin86 profile image
Yasmin86

I only take aspirin. It’s gone down from 900 to 600. I also have a spleen that is slightly on the higher side of being enlarged

EPguy profile image
EPguy in reply to Yasmin86

As EmeraldA says here, are your other blood counts stable and ok?

Wyebird profile image
Wyebird in reply to Yasmin86

Hi, have you discussed this with your haematology dept?

EmeraldA profile image
EmeraldA

Hi Yasim86, have you chatted with your consultant about this yet? If not I would give them a ring to discuss further. What are the rest of your bloods like besides platelets? As Hunter said above it is trend over time and also platelets can cycle up and down. Hydration at the time of blood test also has an impact. Just as a note. My spleen is and was slightly enlarged also at diagnosis with ET Jak2+. Bx

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