MPN Voice Vlogcasts – In Conversation With… a series of monthly informal conversations with members of the MPN community with Nona co-chair of MPN Voice and a MPN patient herself. The vlogcasts can be viewed on the MPN Voice YouTube channel.
The fifth vlogcast in the series is – In Conversation With … Michele
Michele, who talks to Nona about her MPN journey, from her initial diagnosis of PV 34 years ago, which then transformed to MF. Michele talks about her positive attitude towards her MF, and how Ruxolitinib greatly improved her symptom burden. She also shares some of her top tips, particularly having a buddy, she says that being able to talk to someone who understands what it feels like to live with MF really helps her.
We would like to thank Michele for taking part in this conversation with Nona. If you would like to hear more about Michele’s MPN journey, view her patient talk on the video of the MPN Voice Patients’ forum held in Cork on Sat 21 May, available on the MPN Voice YouTube channel.
