Instow1: Dear friends just had 3 monthly boos test... - MPN Voice

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Instow1

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Dear friends just had 3 monthly boos test platelets up slightly so my hem consultant increased my does of hydroxycarbamide

Does anyone know how I can help to lower platelets myself Diet. Drink exercise rest anything so I’m able to reduce my dose regards to all

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Instow1
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hunter5582 profile image
hunter5582

There are a couple of things you can do to improve your odds of reducing thrombocytosis. Reducing systemic inflammation has the benefit of improving quality of life/better functionality and creating an environment in your body that does not promote the overproduction of platelets. There are several strategies you can use, one of which is an anti-inflammatory diet(e.g. Mediterranean Diet). Some us have found supplements that can help reduce inflammation. These include curcumin, N-Acetylcysteine, L-Glutathione. If you choose to use a supplement, your care team needs to know. I consult with an Integrative/Functional Medicine Specialist about the use of these complementary health approaches.

Staying well hydrated is also a very good idea. It will not reduce the thrombocytosis but will reduce risk. And you will feel better overall. This is particularly important when using hydroxycarbamide as It helps reduce/manage the toxicity.

Hope you find solutions that work well for you.

Instow1 profile image
Instow1 in reply to hunter5582

Thank you for your reply

Bluetop profile image
Bluetop

I went on to a Mediterranean diet, included garlic, ginger and other anti inflammatories in my diet and took curcumin. For the best part of a year it seemed as though my platelets were very slowly reducing and I was able to reduce the hydroxy by 2 tablets a week. Then, for some reason the platelets went up again and my hydroxy doseage had to follow suit. I haven't been able to get it down again, but I keep trying! As Hunter says discuss any supplements with your haem.

Instow1 profile image
Instow1 in reply to Bluetop

Thank you for your reply. I’ll try med diet

Mostew profile image
Mostew

Nothing to add to the good advice already given , except platelets can fluctuate even within a day .

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