Have just had a phone appointment with the haematologist - my bloods were perfectly normal except for a slightly raised white cell count (which, I didn't say, is what worried my GP in the first place!); I am to have another lot of blood tests soon and if they are normal, too, which they expect to be, I will be discharged!
Thank you all so much for your support over the last few weeks; it has not been a happy time with this at the back of my mind all the time.
Wonderful news indeed it must be a huge relief for you. Being discharged will be the icing on the cake. Good Luck in the future. Chris
I've just read your ordeal.
So your gp tells you that you have polycythemia without doing the test for mutations? Am I right? And then you are now told....after having mutations tests ......that you do not have it.
That must of been one long roller coaster ride but very pleased you are now discharged with normal counts.
Did your gp tell you your platelets count when they diagnosed you.
Nothing to do with my GP, who referred me to haematology because I had - and still have, come to that - a slightly elevated white blood cell count. The MPN team looked at my results and they seemed consistent with PV, although for some reason the JAK test had been missed. So it was "watch and wait" for six weeks or so, and then more blood tests last week. And apparently the haemoglobin has gone back to normal, as have everything else, and the JAK was negative, although the white blood cells are still a bit raised. As I said, more blood tests in a day or so, and if they are still normal, I'll be discharged.
Wow. So it was the actual mpn team that gave that as a diagnosis. Bet you are so relieved at that. I hope your next one's are good too
I'm sorry I got it wrong
That’s great news. I’ll keep everything crossed for you that all your bloods are okay. It’s strange, sometimes an illness or medication can upset the blood counts and then they go back to normal. Take care, Aimex😻😻
The specialist I spoke to this morning said I might have been dehydrated when the first lots were taken, and certainly I made sure I was fully hydrated before the last lot of tests as it makes it so much easier for them to find the veins.
We are so happy for you, it's not a club that wants any more members 💖 all the best for a perfectly normal life. X
Amazing news for you, good luck for the future
Great news
Congratulations!
Wonderful news! Being dischages would be brilliant.
Possible JAK2+, wondering what the next steps are? 
Update 5.5 - Good News
