I know that there are others who, like me, have just started on Hydroxy. And that many MPNers have expressed concerns and anxieties about commencing drug treatment.
I just wanted to say that I had my two week check and my platelet count has tumbled from 1700 to 950 in a fortnight. In the real world this is still a fairly appalling count (😱) but from my perspective it’s brilliant (😁)!!!! Obviously I’m hoping that it will continue to fall until it reaches normal range. (And then stop!) I realise it might plateau but there is plenty of scope for dosage adjustment. I’m also relieved that while my haematocrit showed a small increase it was still below the threshold for venesection. Double yeah!!
I’m not aware of any side effects. I haven’t gone looking for them. I think some initial tiredness etc was probably due to the anxiety and turmoil that can come with diagnosis and treatment change. Ultimately, with a platelet count like mine, starting treatment was a no brainier. I’m just hugely grateful and relieved that the drugs seem to be doing their job.