How Treatment Goals Impact MPN Treatment Decisions

[hunter5582]

This just came across my email from our friends at Patient Empowerment Network. This short presentation is helpful for anyone with a MPN to review, but especially helpful for anyone new to dealing with a MPN.

powerfulpatients.org/2022/0...

There are some more good presentations and information here.

powerfulpatients.org/help-b...

[Yakety_Yak]

Thank you for info, you always contribute so much to this community😀 I've saved it and I'll definitely have a read👍

[Hidden]

Mor ong hunter lm wondering do you have a link to MPN-SAF 🙏 thanks Adiewon

[hunter5582 in reply to Hidden]

Here it is with the supporting research. (both the 18 question original and 10 question form)

ashpublications.org/blood/a...

mpn-magic.com/symptom-burden/

Fillable 10 question version - nice on-line tool

thehematologist.org/mpn-tot...

For those interested, this is a link to the DIPSS - for MF

mpn-magic.com/test-informat...

[Auggie17]

Thank you for this! Very informative and helpful!

[Meatloaf9]

Thanks you for posting.