Monthly blog dedicated to young people living with MPNs - Alice’s sixth blog: Why do we have MPNs?

[Mazcd]

This month Alice talks about the how and why people acquire their MPN, what causes them, and the research that is hoping to find the answers.

Alice and her parents have thought about many different factors that could have caused her MPN and says it was like searching for the proverbial needle in a haystack. She then started to look into the research that is being conducted, including the MOSAICC study which is aiming to identify causes of MPNs and the study conducted by the Wellcome Sanger Institute and University of Cambridge.

The researchers performed genomic sequencing of 12 MPN patients between the ages of 20 and 81, Alice said that the inclusion of the 20 year old patient made her sit up and take notice, that someone like her was an integral part of the research.

Click on this link to read the blog. mpnvoice.org.uk/about-us/yo...

We hope that you enjoy reading this sixth blog from Alice. If you have any thoughts, ideas, or experiences you’d like to share with Alice on this topic or her previous blog posts, you can contact her by email at: [e-mail]

We would like to thank Alice for another fantastic blog for young people with MPNs.

[Beup]

Thanks Maz for posting!Thanks Alice for your well written and informative blog!I too find myself asking that question. It will be interesting to learn the results of the ongoing MOSAICC project. When I hear you speak or read your blogs, I think you are an impressive and bright young lady.

[Alice_22 in reply to Beup]

Hello Beup . Thank you so much for your incredibly kind words. I really appreciate you taking the time to read my blog and sharing that you ask yourself the same question. Let’s hope they continue making great strides in getting us a little closer to the answer. Thanks again and very best wishes, Alice