Are you a young MPN patient?
Alice, a 26 year old with ET, is now writing a monthly blog dedicated to young people and MPNs, she will be writing about her own personal experience and journey of being diagnosed with ET, together with some of the top tips she has learnt along the way to live with ET.
She will have a blog devoted to managing symptoms at school and university and another on the benefits of a Mediterranean style, anti-inflammatory diet. She will also be collating helpful resources and articles that address the young patient experience and she hopes to connect with and share the stories of fellow young patients and conduct Q&As with clinicians and other healthcare professionals about their experiences of caring for, treating, supporting and researching young MPN patients.
Alice says “we youngsters are a rare and special breed in the MPN community, but although small in number, we have plenty of stories, insights and advice to share, the more our voices are amplified, the closer we’ll get to understanding MPNs in all their diversity and I therefore hope that my blogs will play just a very small part in helping to shine a spotlight on young people and MPNs.”
Alice’s blogs will be published monthly, on the MPN Voice website, in the About Us section. In her first blog, which you can read here mpnvoice.org.uk/about-us/yo...
Alice takes you on a whistle-stop tour of her journey thus far.
We hope that you enjoy reading it and her future blogs. If you would like to send Alice any feedback or have any questions please email: info@mpnvoice.org.uk
We would like to thank Alice for sharing her experiences in her blogs and for supporting the young MPN community.