Video of the MPN Voice ‘Virtual’ Patients’ Forum – Liverpool/Chester/N Wales, now available to view

[Mazcd]

Held on Friday 15th October 2021

The video of the forum is now available to view on the MPN Voice YouTube channel. Click on the link below to view the video.

FORUM VIDEO youtube.com/watch?v=pGpK-Ue...(Not working as expected?)

This MPN Voice online patients’ forum was hosted by Dr Nauman Butt and Dr Rachel Wells, The Clatterbridge Cancer Centre, Liverpool; Dr Arvind Pillai, The Countess of Chester Hospital, Chester and Dr Earnest Heartin and CNS Steph Jackson, Glan Clwyd Hospital, N Wales. The forum was chaired by Nona Baker, Co-Chair MPN Voice. The presentations are:

Introduction to MPN Voice, who we are and what we do – Nona Baker

Objective symptom assessment in MPNs – presented by Dr Nauman Butt

Skin Cancer and MPNs – presented by Dr Nauman Butt, and Nona Baker who spoke about her experience of skin damage and strategies for skin protection

Interferon in MPN (ET/PV) – presented by Dr Arvind Pillai

COVID and MPNs – presented by Dr Earnest Heartin

A panel Q&A session where the medical team answered questions from the audience

The breakout groups are not included in this video for reasons of confidentiality and privacy.

We would like to thank all the speakers who took part in this forum, we are very grateful to them all for giving their time to support the MPN community in this way during these very challenging times.

And a huge thank you to the Guy’s & St Thomas’ Commercial Service Directorate team for all their help and assistance in producing this forum.

MPN Voice, like many charities/organizations, has because of the impact of the COVID pandemic, experienced a decrease in funds being raised and donated and therefore we are asking everyone to be as generous as they can to help us support our ongoing projects supporting the MPN patient and healthcare communities. We would be very grateful for your support with a donation to MPN Voice which you can make via the MPN Voice JustGiving page justgiving.com/mpnvoice thank you.

[Beup]

Thank you for posting this! I am newly dx ET and I am learning a lot from this forum. I hope others watch this. I learned from expert doctors about MPNs: and incident of skin and other cancers, Covid vaccines, and use of interferon like Pegasys including side effects and outcomes.

[Mazcd Partner MPNVoice in reply to Beup]

hello Beup, glad that it helped you. Best wishes, Maz