Has anyone noticed this in their tests? Since my diagnosis, my thrombos are always at their lowest in springs and go way up every July/August, then return to normal end of September.
Is it the heat? (For this in the Northern Hemisphere 🙂)
Is it the eating more green salad and vitamin K?
Any thoughts, ideas?
Thanks
Anag
Hi! I just had a look at my results and I dont see that pattern. However I was diagnosed at the start of last year so only going through my second summer now. I will keep an eye on this and see if this happens. I hope is well with you? Bx
This sounds like something I would like to look into but not sure what thrombos are me being daft😅
Thrombocytes! 😁
Never seen that pattern myself. Maybe mild dehydration? Perhaps some increased inflammation during vigorous Summer activities triggering reactive tholmbopcytosis. Have you been training for the Iron-person Triathalon?🚴🏊♀️🏃♀️
Hope all is well otherwise.
On the contrary. I drink more than enough in the summer (3-4 liters) , less in winter. I generally do some gardening and movement in spring. Am always happier then, since the sun is back and I’m excited about summer. Have Hardly had any activity this summer, since my 3 disc Prolapses in my neck. Just started very light aerobics and vertebrae training 1. August. Very slowly getting some muscle back. Tedious. I used to be an extremely fit and strong woman, once able to lift one of my dramatic tenors who was 225lbs. This summer I was hardly able to lift a singly shopping bag. At least I am really motivated. 😁
Glad to hear that you are finding ways to exercise. It makes a huge difference in quality of life. I have been doing Qigong and recently added Gungfu training. Was about to head back to the gym, but with COVID spiking again am going to hold off. It has been too sweltering hot to exercise outside. Hope you are soon hoisting those dramatic tenors!
I used to do QiGong and TaiChi (25 yrs ago) Apparently QiGong is amazing for cancer, but there are details to be aware of, then the effect is stronger. There’s someone in England, who’s incredible and has tutorial videos on internet. I followed some of his lectures/ exercises, but then lost the link. Male, middle aged. Do You have a clue? Would love to start again.
No clue about the tutorial videos. The Sifu I train with has moved to a combination of on-line and in-person-outside classes. He is an expert in Qi Gong, Nei Gong, Gung Fu and other forms. I started with various forms of Qi Gong (the Six Healing Sounds Tai Ji Qi gong, Tai Ji Quan - 24 form simplified - aka Tai Chi, and the Eight Brocades Standing). You are correct in stating that there are more details to be aware of to maximize the benefits. There is more to it than the movement, balance and flexibility. There can be significant health benefits when taught by a skilled practitioner.
I recently stated training in Gung Fu as well. Where Qi Gong is more internally focused, Gung Fu is more external and is intended as a martial art. The line is not so clear actually, and the elements are actually mixed together. As you probable recall, many of the movements in Tai Chi have a martial application when done at full speed.
I do hope you can find a Sifu and start again. Qi Gong really does have many benefits and can really help with managing MPNs.
All the best.
Thank you so much, Hunter! I’m now back at home and settled after a long summer away. And! My TV is connected with internet. Time to look up and study the info above. 😁
Interesting. I have checked mine but don't see that pattern, however my doseage is always being tweaked, so its difficult to say.
Not sure but what I do know is that it’s winter here and I was having a really terrible time with inflammation issues with my feet last summer but since this winter kicked in all the pain and heat are gone.
The sun helps all joints. Make sure you’re taking vit D in winter. Levels should be at least around 75. To do that, I take 40-50,000 IUs weekly in the dark months. Austria is cloudy and dark from October till March and during the whole summer this year 😣. I think it’s time to take some D right now.
I have been saying this to my consultant for 14 years.
My bloods are up in the summer and down in the winter. I gave up talking about it as they don’t see the pattern or any connection.
Now that’s interesting. Do you have any idea why that’s so? I’ll be seeing my hemo mid September. She’s amazing. I’ve been seeing her for almost a year and I’ll ask her. This is the fourth year in a row, where this roller coaster is constant. I won’t stop till I figure this out! 🙂 thanks so much for answering. I’m sure there are others, but they just haven’t seen the relationship yet. All the best Anag.
I’ve always believe it has been the heat that make the platelets rise. I could be wrong. It would be interesting to have a study on this, OR people to look back and start monitoring.
Getting haematologists up to speed
Feeling low and fed up
London Forum Follow Up
Let’s make the most of summer while we can
