Red rash: Does anyone find they have a rash on the... - MPN Voice

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Red rash

Tilly_Rose profile image
13 Replies

Does anyone find they have a rash on the bottom half of their legs I am ET JAK2 diagnosed since June 2019 and take Hydroxy and aspirin this rash is under the skin and blotchy thank you in advance

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Tilly_Rose profile image
Tilly_Rose
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13 Replies
bordeauxgirl profile image
bordeauxgirl

Hello Tilly, Sorry to read about the rash on your legs, I have PV and 'the Rash' but rather than the meds I have had it since the beginning of my PV, so I think it it part and parcel of our united conditions, I was treated for six years by the local Dermatologist to no effect. So I went to our local type health shops and bought a tin of herbal cream containing Cannabis extract/Hemp extract/Coconut oil and laslyt Bees wax. It does NOT contain all the nasty stuff associated with the first ingredients and the company who make it are called 'The Original Alternative ' United Kingdom. I used it out of desperation after six years by the establishment. After ONE WEEK i noticed clear patches between the rash sites then in TWO weeks it was gone, my GP approved me using it and when she saw it almost got up and did a jig around the room .IT IS COMPLETELY SAFE. Try it , it cannot harm and it softens the skin so it doesn't itch. Best also to carry on using it after the rash has gone,as it has the habit of re-appearing if you don;t I know this as I am back after three months free . Contact me again if you need to.

Tilly_Rose profile image
Tilly_Rose in reply tobordeauxgirl

Thanks for that I will go to my health shop we have a Holland & Barrett in my town

bordeauxgirl profile image
bordeauxgirl in reply toTilly_Rose

If you can't get it there PM me and I will send you the address of the suppliers in Ipswich. June.

Tilly_Rose profile image
Tilly_Rose in reply tobordeauxgirl

Will do thanks again

Magentas profile image
Magentas in reply tobordeauxgirl

Hi, I have had an itchy, bumpy rash on the shin for over a year, cortisone cream alleviates it somewhat but I avoid using the stuff mostly. I too have put it down to our condition. I am in Australia but have a friend in Nottingham that could send me some so if you have time would you mind sending me suppliers for her. It would be much appreciated, thanks!

bordeauxgirl profile image
bordeauxgirl in reply toMagentas

Here's the address you need for the cream, CBD Brothers, 1010 Farm, IP30 9QR. or WWW.CBDBROTHERS,COM. I use the cream called 'The Original Alternative' for my rash , as I write my rash is fast disappearing. Such a relief now the warmer weather is getting into swing. Good Luck , but I would say check with your customs import office before your spend out and explain the cream DOES NOT CONTAIN ANY NASTY INGREDIENTS. June x

Magentas profile image
Magentas in reply tobordeauxgirl

Thanks so much for that. I had both coconut oil and hemp oil (food grade) on hand so I mixed it with some moisturiser and put it on my rash I think it helped 😊. I may try making a salve myself as I also have some beeswax.

Tilly_Rose profile image
Tilly_Rose in reply tobordeauxgirl

Thanks for the address Bordeauxgirl will order some 👍

Uzza profile image
Uzza

Yes, I have...sometimes better sometimes worse. It does seem to go away.

Cheers

Uz

Tilly_Rose profile image
Tilly_Rose in reply toUzza

Thank you Uzza I think mine gets a bit better sometimes

Wyebird profile image
Wyebird

I don’t have a rash but think it’s extremely important you tell your heamo. Hope you find a solution soon

bordeauxgirl profile image
bordeauxgirl in reply toWyebird

Just to let you know about the rash situation and the use of the herbal cream I told Tilly Rose about , I informed my Haematologist and he was quite happy for me to use it , hope that puts your mind at rest. NO nasty ingredients.

Magentas profile image
Magentas

A link to the cream - cbdbrothers.com/product/hea...

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