Mpn diagnoses.

[Bmj63]

Diagnosed 6 months ago with Mpl positive ET.on aspirin and 1gm. Hydroxycarbamide.have since read online that mpl et diagnoses should probably be diagnosed as pre PMF.should i seek a biopsy.

[Ovingite]

Hi. We cannot give medical advice on this forum - that should be down to your hemo. However I would urge you to be careful in where you get your MPN info from as there is a lot of unvalidated 'data' on the web. LFor most people on this forum the go-to source is the MPN Voice website, which is compiled and managed by MPN experts and explained very clearly.Give it a try.

mpnvoice.org.uk

Good luck with your MPN journey

John

[IreneOrchid in reply to Ovingite]

Thank you that’s really helpful to know I’ll check it out. I was diagnosed with ET (CALR) last March.

[mark382 in reply to Ovingite]

I agree with john. Lots of misleading old information on Dr Google. For reliable information go to your haematologist or MPN Voice.

[Mazcd Partner MPNVoice]

hi Bmj63, best to discuss this with your haematologist or your specialist nurse who will explain what being MPL positive means. Best wishes, Maz

[hunter5582]

Agree with the others about valid sources. The Voices of MPN site is a great place to find information.

Here is another reference you may find useful. All the presentations are good, but MPN Molecular Biology may help answer your question best.

mpninfo.org/conferences/201...

Hope that helps.