MPN Voice Fundraising Update September 2020

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MPN Voice and The Fundraising Team, would like to say a big Thank You, to everyone who is taking part in the “30 days Hath September Challenge” and the MPN Awareness Day on 10th September.

Speaking with those taking part, there seems to be a very like-minded message. Because of Covid-19, there are so many things we can’t do as normal. But by choosing something to do that won’t be affected if the restrictions are tightened or relaxed, fundraising and awareness can continue.

Everyone is fundraising and raising awareness, so that MPN Voice can continue to support our MPN Voice Community as well as fund research, so that there is more understanding of our MPNs, which will lead to the development of new treatments. So we can Find The Cure.

We thought you’d like to hear about some of the amazing challenges that our wonderful supporters have come up with. We’ve included their Just Giving page links, just in case you’d like to add your support.

Please don’t forget, if you’re doing a challenge, or did something for the MPN Awareness Day, tell us about it, send in some photos.

Joanne Humphries, who is a Makeup Artist, promoted MPN Voice’s Awareness Day on her Instagram site, sharing her ET story, to raise awareness about MPNs and MPN Voice, she had many likes and re-posts, and donations to MPN Voice, she also had people with MPNs contacting her to lend support.

Richard Ellis and his wonderful dog Myla to keep him company, is undertaking a Step Challenge and walking 300 km. The same as walking coast to coast, from St Bees in Cumbria to Robin Hood’s Bay in North Yorkshire. So far Richard has covered 129km, just over one third of the total distance and Myla has probably already completed the full 300km and some! justgiving.com/Richard-Ellis48

Sally Humphreys should have been doing the London Marathon this year for MPN Voice, but Covid-19 has stopped that! But Sally has kept on with her amazing training, and has set herself a new challenge “Sally runs 5km a day in September”. justgiving.com/fundraising/...

Rachael Yeomans, who was diagnosed last year, couldn’t go to the gym because of Covid!! So she decided to put on her trainers and for the first time ever, run outside. Rachel’s challenge is to run 30 miles in 30 days, double the miles completed in a month since her very first run only 3 months ago. justgiving.com/Rachael-Yeomans

Suzy Angus, who has ET and finds fatigue very limiting, has started her Hoola Hoop Challenge, 5 minutes a day, every day throughout September. Suzy is very pleased how it is going, she only dropped the hoop once in her first session. Suzy’s hoop is weighted, so that has caused a bit of bruising around her waist and her arms are a bit sore from being in the air! justgiving.com/Suzy-Angus

Emma Webster and James Noon have set themselves a “good virtual challenge”. They are both, individually cycling the distance of 1744km in the living room on their Peloton Bike. Yes they are cycling from Land’s End to John O’Groats! They started on 1st August and will finish on 30th September! They’ve each done over 60% of their challenge, the really hot weather in August has thrown the schedule out a bit, but they are both positive that they will reach John O’Groats on 30th September!! justgiving.com/fundraising/...

Vickie Peers, whose daughter has ET, is doing a ‘virtual walk’ from her home in Chester to Anglesey! She will be walking 2 - 4 miles around her local area every day in September, a total of 90 miles! justgiving.com/Vickie-Peers2

Helen Sakallis, has started a fundraising page for MPN Voice Awareness Month. justgiving.com/Helen-Shakal...

Hanna and Rich are going “Sugar Free” for the whole of September, but started a bit late so will carry on until 28th October, and will be giving up sweets, chocolate, cake and biscuits, they will celebrate the end of their challenge on their daughter Libby’s 1st birthday on 29th October with a birthday cake. justgiving.com/fundraising/...

Claire Calverley-Smith, is well known for her walking challenges in support of MPN Voice, last year Claire walked nearly 1,000 miles and raised over £1,941 for MPN Voice. Her new challenge for September 2020 through to August 2021 is “Movin’ on Up”, to build up her walking towards climbing a Fell or Mountain in the Lake District. justgiving.com/fundraising/...

And of course we also had the wonderful Evening of Traditional Music from Ireland on MPN Awareness Day, organized by Maëlla Roué Demians, specially for MPN Voice to raise awareness and funds. Many performers took part with a wonderful mix of music and songs. JustGiving page to show your appreciation for this wonderful concert. justgiving.com/fundraising/... The video of the concert is available here mpnvoice.org.uk/get-involve...

So many amazing MPN Voice supporters doing so many challenges. Thank you so much for your wonderful support.

We also would like to thank all the fundraisers who took up the 2.6 Challenge which ran from April to May, it was organized by the people behind the biggest fundraising events in the country because of all the events that were cancelled due to COVID-19 like the London Marathon. Fundraisers were encouraged to complete an activity based on the numbers 2.6 or 26, you can read more about them and their amazing challenges here… mpnvoice.org.uk/documents/F...

Covid19 has changed the way we all do things, but with your fundraising support MPN Voice will be able to continue supporting our MPN Community, embrace virtual information and fundraising, fund research and Find The Cure.

Thank You

The Fundraising Team