Access to Forum

[Nikou]

hello, I am new to MPN voice.

I missed the Forum yesterday. Is there anyway of accessing the event online now?

I would be grateful if you would let me know.

[Vtr1000]

Hi Nikou, it’ll be on MPN Voice in a day or 2.

[Aneliv9]

What was thia forum about?

[Ebot in reply to Aneliv9]

The forum was organised by MPN Voice and featured some of the leading MPN specialists in the U.K. including the team at Guy’s Hospital in London led by Prof Harrison.

Topics covered included MPNs and Covid (there was also a really interesting update on vaccines and treatments from Prof Adam Mead at Oxford), a round up of the latest treatment trials for MPNs, a really excellent presentation on managing mental health for MPN patients in times of Covid, especially as lockdown / shielding eases. And there was a really good panel Q&A to conclude. Three hours in all. Well worth watching.

[socrates_8]

Me too...

I was there... a tad late, however, the audio stopped working and I missed it all as a result...

Maybe next time will be better...(?) C'est la vie...

Anyways, if there is a full recording that would be awesome too...

Best wishes all, stay safe & well...

Steve

ox

[Mazcd Partner MPNVoice in reply to socrates_8]

Hi Steve, what a shame you had problems, video will be available soon. Best wishes as always, Maz x

[socrates_8 in reply to Mazcd]

Hey Maz...

Yes, was a pity... at least this time it was not at my end...

Happy to see recordings when they are available. Thank you Maz...

Steve

ox

[Aldebaran25]

Looking forward to the recording😊.

The Guy’s team is brilliant and listening to their advice is very informative and reassuring. Missed the live stream as I am staying with my mum (late 80s) for a month and I have kept her in the dark regarding my MPN. No need to make her worry .

[Mazcd Partner MPNVoice]

Hi everyone, to those of you who missed the forum on Sat, or had technical problems, we will be putting a video on our website and YouTube channel, hopefully by the end of this week. Maz

[EmeraldA]

Thanks so much for setting up such a great session!