Night sweats and EM

[Fitness77]

Hey all . I am new here. I "supposedly" have PV. all the symptoms, BMB appeared normal. Awaiting the Mutation/ tests for Jak2 and so on. My question does anyone have EM (erythromelagia) ? My hands are mainly affected and flair or burn a few times a day . here are some pics. I also have severe night sweats. Only weird thing my Vitamin b12 is well above 2000 ( insane) and my MCV is HIGH 109. Like I said I am new to this and wondering what remedies help you all. I am on 325 aspirin 2X a day and 1 a week blood letting.

Janelle

[Tomsgranny]

Hello there, Janelle

I have PV JAK2 - diagnosed last year. One of my most irritating symptoms is EM, but it mainly affects my feet, especially overnight. I also get headaches every day, but, again, they are worse overnight. I’m on hydroxy carbamide and have recently tried aspirin, despite being on Rivaroxaban for Atrial Fibrillation. I talk to my haematologist regularly, but he is at a loss to know what else we can do.

So, apart from sympathy, I’m afraid there’s not much I can offer in the way of help. In my case the pains go when I get myself moving, so that’s what I do!

Good luck, Judi

[Pte82]

Fitness 77, research thiamine deficiency with EM. Problem with thiamine is it requires enzymes created by magnesium to become active and also works better in a B Complex. Stress causes magnesium loss as well as HU leading to a deficiency making many other symptoms to show their ugly head such as headaches, atrial fibrillation and since it prevents platelets from sticking together, clots. Informational sites like mgwater and krispin magnesium are helpful. Boron increases magnesium absorption so search on "nothing boring about boron". Always consult your health professional before using any supplements.

[JaK2ET]

Welcome to the forum! I hope that you will be able to get help to ease the symptoms of erythromelalgia (EM) very soon.

I have just been reading various webpages to learn more about this condition. One frequently found statement is that EM is significantly more common in women than men, yet none of the items I read suggested any explanation (or even hypothesis) for why this is so ...

[jmctrek]

Hi Janelle. Were you able to find out why your Vit B12 was so high? Mine is borderline high even though I do not regularly use Vit B12 supplements. Hope your EM is managed and getting better.