High platelets: Hi, I've just joined, after having... - MPN Voice

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High platelets

Lizzie20 profile image
9 Replies

Hi, I've just joined, after having a blood test in February my platelets 508, fbc normal, inflammation slightly high. I had a fushion in June 2017 as anaemic, is there anything to worry about the platelets? Thanks

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Lizzie20 profile image
Lizzie20
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9 Replies
Lynette1 profile image
Lynette1

508 is not horrendously bad Lizzie (although higher than normal). Mine got up to 1200 at one stage and I think it's steady (and kind of acceptable) now on around 500.

Lizzie20 profile image
Lizzie20 in reply to Lynette1

That's high what caused that?

Mpncoda profile image
Mpncoda in reply to Lizzie20

My endocrinologist assured me that at 500 - that it could be “ normal” for me. I think we need to take into account that we are all individuals and give a little leeway since no 2 people are alike.

Lynette1 profile image
Lynette1 in reply to Lizzie20

I don't really know. I have a few auto-immune disorders and once you have one, it can snowball, with more manifesting. Re the high platelets I was diagnosed with Myproliferative disorder :-( In addition, I have just finished treatment for breast cancer - it was diagnosed after a mammogram, 10 months ago.

Mazcd profile image
MazcdPartnerMPNVoice

Hi Lizzie20, you do need to discuss this with your doctor with regards to the platelet count and going forward with regards to what is causing this, has your doctor mentioned to you that it could be a MPN? Kind regards, Maz

Lizzie20 profile image
Lizzie20 in reply to Mazcd

it's not been mentioned but perhaps I should book a phone appointment. Thanks

Wyebird profile image
Wyebird

Have you been diagnosed? If not that level isn’t that bad but do not be fobbed off request a few more. I was fobbed off. That resulted in a 10 month delay in diagnosis. Keep a copy of all your blood test results.

You could have raised platelets due to an infection you are unaware of.

It’s early days yet. Try not to worry.

JaK2ET profile image
JaK2ET

Welcome to the forum!

Your doctor will probably order more blood tests to see if your platelet count is rising over time or if it has simply spiked because of an infection ...

Good luck!

Lizzie20 profile image
Lizzie20 in reply to JaK2ET

Thanks I will. I'll let you know.

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