My latest numbers are good

[shiftzz]

My latest bloods are good.. I've updated my excel Blood book...

[Applesnpears]

Nice graphs!

How often is your blood being tested? Looks almost monthly.

What treatments are you having?

[shiftzz in reply to Applesnpears]

Hi... I was having bloods done every two weeks, early on. Then monthly, now every 6 weeks. I am lucky my partner is a nurse, she takes the blood, I drop it off at the local hospital.

Treatment, I was on aspirin , then they added hydro, I was on 17 hydro a week, plus venesections. My numbers came down and eventually about 2 years ago they added pega, but still on Hydro, 6 a week..I have to have the odd venesection, last one was in November, so Im going ok... Next appointment is March, they do interim bloods every 6 weeks, Im still very tired and I think I am developing a cough, possibly from the pega.

The graphs helps me took at the trend. apparently I am one of the few patients that my consultant has seen who does it.

Hope that helps

[Applesnpears in reply to shiftzz]

I've done something similar with more recent data but I've not got ready access to the earliest results where the impact of treatments would be greater.

[shiftzz in reply to Applesnpears]

Thats a shame. We have a blood book which te consultant completes, I just transfer it to a spreadsheet, keeps my brain active..

[hunter5582 in reply to Applesnpears]

Do you have a patient portal to access your records? I can log in and look at all of my labs anytime I want. This technology is pretty common these days. Every doc/facility I go to has this available. If not, your doc/facility still has your results. Those are your records - your own them. They have to give you your results anytime you ask. Some of the more antiquated systems may take a bit longer, but it should always be possible.

I also track my results on my own and keep copies of everything in my own medical records. I get hard copy of the CBCs before I leave the hematologist's office - so I always have them.

All the best to y'all.