Slowly increasing numbers: Hello Everyone, I have... - MPN Voice

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Slowly increasing numbers

Vigiindia profile image
6 Replies

Hello Everyone,

I have done my CBC reports yesterday and send to hematologist and doctor still stand on wait and watch approach

My numbers are

RBC-5.1(range4.5-5.5)

HB-17.2(range13-17)

PCV-48 (range 42-50)

MCV-(range89-100)

WBC 9.3-(range 4-10)

Platelet 3.97 -(range1.5-4.5)

MCH-33.4(range 28-32)

Doctor said that since your RBC numbers is not high so there is nothing to worry!

Recent times I have experiencing gum bleeding and mild headache.

my HB crosses Above normal limits after 8 months.I have a only 2 phlebotomy before 8 months.

I have not on any meds .

This is my second hematologist and I thing its time to take 3rd opinion.

Best Regards

Vigiindia

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Vigiindia
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6 Replies
Wyebird profile image
Wyebird

I’m afraid I can’t pass comment. Do your doctors know about your symptoms?

Have you been diagnosed with a specific MPN?

My heamo is an MPN specialist. She discusses what level of meds I should take with me.

Good luck

Vigiindia profile image
Vigiindia in reply to Wyebird

Thanks for your reply

No am not authorised diagnose with MPN but my numbers tells so, but as i had not required phlebotomy since 8months my doctors seems not interested in PV diagnosis.but my HB crosses normal limits now... and so am starts worried

Wyebird profile image
Wyebird in reply to Vigiindia

Maybe request an mpn specialist ask Maz for a list xx

hunter5582 profile image
hunter5582

Variation in blood cell numbers is normal and it is hard to interpret out of context. If your diagnosis is polycythemia, then the critical number is hematocrit (HCT). if you are uncertain that the hematologist you are working with has the KSAs (many do not) to treat a MPN, then consultation with a MPN specialist certainly makes sense. This is a list of patient-recommended docs with MPN expertise mpnforum.com/list-hem./ .

Hope you get answers soon.

Vigiindia profile image
Vigiindia in reply to hunter5582

Yes you are right

Variation in numbers are so hard to interpret and my both hematologist always told this

Thanks for MPN expertise list

Selvamok profile image
Selvamok

If not having any Mutation, treatment is phlebotomy only.

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