MPN symptoms

[neela2020]

Is nail bed turning color is a symptom of MPN? What are other common symtoms we should aware of?

[Mazcd Partner MPNVoice]

Information about MPNs, how they are diagnosed, symptoms etc, can be found on our website mpnvoice.org.uk Maz

[neela2020 in reply to Mazcd]

Thanks , that list doesn't include Night sweating and others, I am wondering is that not common with MPN PV?

[Mazcd Partner MPNVoice in reply to neela2020]

yes night sweats are a symptom of MPNs, this is detailed in our booklet about ET and PV see page 8 for the graph

mpnvoice.org.uk/documents/t...

[socrates_8]

Hey Neela...

In my own case, I had a really bad case flaking and chalky cuticle for a great many years w/out respite of any remedy from the 'Unaware' medical fraternity... Tried every suggested remedy but to no avail... (?)

My fingers and hands also ached in pain sometimes burning and other times freezing cold...?

However, after circa 15-20 years. I finally became diagnosed & the Low-dose (100mg) aspirin helped my circulation improve, & my nails completely recovered within 2-3 months, I believe...

Apparently, the higher Platelet regime was the cause of the problem...

That & my Von Willebrands Syndrome (VWS) Type2... (Lacking the coagulating factor VIII Protein in my blood)

Hope this helps...

Steve

(Sydney)

[grgracey in reply to socrates_8]

Really? I have some bluish color of my nails now from my toes and also my fingers maybe because of taking hydroxyurea...

[neela2020 in reply to grgracey]

.its a great support to share the symptoms and experiences with someone who can understand what we are going thru day to day life.

[hunter5582]

Changes in nail color can be an adverse reaction to hydroxyurea if you are taking it. Certainly something to review with your doc.

[neela2020 in reply to hunter5582]

she said not to worry immediately..will follow with her

[hunter5582]

Glad to hear you will follow up. Hope you get it sorted out ASAP.

[neela2020 in reply to hunter5582]

Are you aware of role of TET 2 with JAK positive PV?