I live in North Yorkshire and was diagnosed with PV in October 2016. Like many peopleI had tell tale signs but didn't recognise them initially I had night sweats, tinglingvin my hands, fatigue and most serious a DVT and PE out of the blue .
I was eventually diagnosed following a routine blood test where my platelets, red blood count and Haematacrit levels were very elevated .
After a 18 months of weekly to 2 weekly venesections, trying but not having posituve results from anagrelide and interferon I am now well controlled on Warfarin and Ruxolitinib ( because of a melanoma in the past I cannot take hydroxyurea).
I am now really well controlled , have lost some excess weight I was carrying and keep as active as I can . After the initial shock of diagnosis I now, like many pepes living with with an MPN, get on with and enjoy my life . I keep positive knowing that through fantastic research by dedicated medics, knowledge of these complicated blood conditions are increasing massively and new treatments and ways of managing the condition are improving all the time xxx