Hello everyone! I was diagnosed with PV last week following a JAK2 test in hospital 7 weeks ago when I was admitted with a blood clot in the brain (they also found a benign tumour which is unrelated).
I am 63 and have worked happily as a Graphic Designer for many years and as a hotelier for the last 2 years. I also qualified as a hypnotherapist 3 years ago. I have felt progressively incompetent at work for the last year or so and noticed an inability to deal with numbers and maths (a bit of a problem as I am responsible for the accounts for both companies!) But I think this is due to the brain tumour more than the PV.
I have been experiencing PV symptoms for a couple of years - itchy skin and burning feet and I am now on Hydroxycarbamide 2x500mg capsules a day. I have given up both my jobs and my friends keep asking me why I am so much happier than I have been for a long time - I think it is because I now have a diagnosis to why I have been feeling unwell and I don't feel guilty about looking after myself. I now spend time with my wonderful friends and family who are incredibly supportive. I am thinking of taking up yoga and meditation and I also practice self-hypnosis regularly which is a wonderful way to 'escape' (usually to a tropical beach in my case). I do get tired very easily but find a day in bed or lying on the sofa picks me up for the next day. I entered some lino prints into an art exhibition on Wednesday last week which took my mind off things but I found to be quite stressful - so I need to find my limits.
Looking forward to communicating with you all and hearing about how you are getting on and maybe making some new friends...