Newly diagnosed and new to the site: Hi All, I... - MPN Voice

MPN Voice

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Newly diagnosed and new to the site

25 Replies

Hi All,

I just wanted to introduce myself and say hello. I was diagnosed with ET in April and have been lurking on the site for a bit. I really appreciate all of the information! It's very reassuring to know that I'm not alone and that my symptoms aren't just in my head. Thank you for sharing your experiences!

25 Replies
darcey profile image
darcey

Welcome we are a friendly lot really and it's helpful to just read other posts sometimes.

When you do ask something you get lots of advice, to help you through. Once again welcome.

Mazcd profile image
MazcdPartnerMPNVoice

Hello and welcome to our forum, glad to hear that you have found our forum to be helpful. Best wishes, Maz

Tinkerbell13 profile image
Tinkerbell13

Welcome from a fellow ET sufferer and well done for 'lurking'! You have found the most friendly and helpful site that any of us could possibly imagine. Very best wishes, Tinkerbell13

lizzziep profile image
lizzziep

Hello fellow ET sufferer! Isn't it a relief when you find this site and realise by reading the posts you're not alone and that most of the things you've read about ET on the internet aren't true. 😳😄

Best wishes

Lizzie

Nickthedevil profile image
Nickthedevil

Welcome to the forum. I too have ET and have found it incredibly helpful.

AndyT profile image
AndyT

Hi Jason - welcome to the site - feel free to ask any questions - it's great how much information and experience we have to share between us..!

Best regards

Andy

swess profile image
swess

Hi Jason, welcome to the forum. :)

Malaika profile image
Malaika

Hi just wanted to say welcome to this forum. I was diagnosed with ET in 2001 and really wish I had this forum to help me at that time. I was very fearful then but after all these years accept this and get on with my life to the best I can. Just relax and know that there are lots of folks who can and will help you. All the best.

mickey64 profile image
mickey64

Welcome, I have found even though I am from the US this is best site out there! Mickey

in reply to mickey64

I'm in the US (Texas) also and agree!

Superwoman profile image
Superwoman

Welcome, welcome, welcome

nivana profile image
nivana

Welcome to our forum - I am sure you will gain useful information and help from everyone.

linds profile image
linds

May you find many pearls of wisdom from friends who really do 'understand'. Welcome .

Kerri2 profile image
Kerri2

We

Kerri2 profile image
Kerri2

Welc

Kerri2 profile image
Kerri2

Welcome, et jak2 + here in CO. Diagnosed 8 mos ago. Are you on medication? Platelets under control and doing fine.

in reply to Kerri2

Thank you! I'm only on aspirin at this point. I'll go back in a month or two and see how it's working. Hopefully it's doing the trick. I feel better on it than off.

Kerri2 profile image
Kerri2 in reply to

Good luck, if they do suggest Hu it's not that bad.

in reply to Kerri2

Thank you! What exactly is HU? I see it posted a lot, but don't know what it is.

Kerri2 profile image
Kerri2 in reply to

Hydroxyurea, one brand name here in the states is Hydrea.

JediReject profile image
JediReject in reply to Kerri2

Few years back in UK changed drug name to Hydroxycarbamide. You're right Kerrial most folk tolerate it quite well. I was taking it for 10 yrs and some been taking it 20+. , , Chris

mhos61 profile image
mhos61

Welcome Jason to this informative and friendly forum.

Mary

JediReject profile image
JediReject

Glad you found our Forum as everybody is so supportive and helpful. The folks on here have helped me through some challenging times with their unwavering support. . Cheers Chris

tracey1003 profile image
tracey1003

Welcome to the group. It is a wonderful feeling to know your not alone the information on this site is amazing. I am also new diagnosed in jan and feel so much better knowing that you can interact with peoplethat have the same diseases as you

Welcome Tracey from australia

Jackie49 profile image
Jackie49

Hi Jason welcome to the club.

Jackie

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