Hi, I'm 57. I was diagnosed with Jak2 PV last July and I can honesty say, I've never felt particularly well for around 20 months now. My hematocrit level was extremely high when I was taken into hospital and was brought down with around 11 venisections in three months. I had a further venisection in September as my levels were rising again, including my platelets which are currently just under 600. I am presently off work with really bad fatigue and my consultant advised this week that it's due to my iron being extremely depleted due to the venisections. I suffer from night sweats (that happen during the day too), burning feet, bleeding gums, poor concentration etc. The only thing I don't suffer from that can be associated to the condition is high blood pressure. I'm even having stomach problems with taking aspirin, even though I take the gastro resist type.
Oh the joys! Does it ever improve? Regards, Joyce