Just to say hi

[redvanman]

I've never been on a forum. I'm a 54 year gardener . I was diagnosed with polycythaemia 14 years ago .

Been on hydroxy carbamide since then .. generally all ok but Tuesdays visit to derrifiord revealed a noticeable drop in neutrophils. And so a reduction in my drugs to try and sort it . Any change is a bit of a worry

[Pippa63]

Hi. Welcome. I have ET so can't really help you with your changes but there are plenty here that will be supportive ... Any change is a little worrying but hope you can have your mind put at ease .....I've had changes in my blood results but generally all was sorted and came back to a reasonable level Pippa

[mhos61]

Hi and welcome to our forum. You will find it helpful and supportive.

Hope the reduction in medication sees those neutrophils back in the normal range soon. They can also drop with infections etc.

Mary

[Mazcd Partner MPNVoice]

hello and welcome to our forum. You will see that the people on this forum are very supportive, so I am sure you will get a lot of replies. Hope your counts settle down soon. Best wishes, Maz

[Cja1956]

Hi, welcome to the forum. I have polycythemia also but I’ve never heard of neutrophils. I do know that I’ve been sick for 11 years and I’ve had to readjust my medication many times. Good luck with everything.

Cindy

[S031251]

Hi redvanman, neither had I, it’s a great source of comfort and knowledge. I have had PV for 4 years and doing fine now on ruxolitinib.

Hope the reduction in neutrophils is nothing to worry too much about..

Anna

[Meatloaf9]

Hi, just wondering if you are a 54 year gardener or a 54 year old gardener. Always interested in how old people are when they contract these diseases and how long we can hope to continue doing well with our mpn's.

[RobPV]

Hi redvanman and welcome to the group. I too have PV. Mine was diagnosed 2 years ago now after a year of ET symptoms. You will usually find someone on here who can answer any question or just offer support. Hope those neutrophils are back in line soon.

[Selvamok]

I am 53 years old and having Polychythemia since 2010 when my PCV was 56. After that I am drawing blood 500 ml twice in year. In last 2 years I am gone for venesections yearly once. All mutaions are negative and taking asprin 75mg only. BY God grace PCV only increasing.

I am also experienced, WBC/neutrophils drops below average and coming back to normal. But don't know the reason.