Just need to vent: Hi, All, I haven’t written in a... - MPN Voice

MPN Voice

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Just need to vent

Cja1956 profile image
26 Replies

Hi, All, I haven’t written in a while but I’ve been following many of the discussions about vaccines. I’m scheduled to have the Pfizer vaccine in a park on Tuesday. I’m a little nervous even though I’ve been given the go-ahead by my hematologist. But a doctor in a hospital near me had it and had a reaction and died 2 weeks later. He was 56 years old and in good health but his platelets dropped to 0. He was put in the ICU and all kinds of specialists were called. Sadly, he had a stroke and died. They diagnosed him with ITP (immune thrombocytopenia). The truth is we still don’t know much about the vaccine ie; long and short term side effects, efficacy for people with blood cancer, and how long the immunity lasts. We are still being advised to wear masks and follow protocols even after we take the vaccine. For what it’s worth, I’ll probably still go ahead with it next week, but with much trepidation.

Take care, everyone.

Cindy

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Cja1956 profile image
Cja1956
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26 Replies
hunter5582 profile image
hunter5582

While nothing is 100% or without risks, I certainly like the odds of having the vaccine better than not. I plan to get my vaccine as soon as I possibly can. I certainly think you are making the right choice.

Cja1956 profile image
Cja1956 in reply to hunter5582

Thanks, Hunter. Yes, I agree that statistically, everything will be fine. And since my hematologist does think I should have it, I’m following her advice.

Dovme profile image
Dovme

I agree with Hunter nothing is without risk. Think of our medications or any medication and the pages of listed side effects. l too will definitely take the vaccine - it’s been tested and approved, millions are being given these vaccines in the hope that we eradicate or at least control this awful disease.

My understanding is that the vaccine doesn’t make you immune to catching and spreading Covid what it does is eradicate the symptoms or reduce them significantly Hence even when vaccinated and until enough of us are vaccinated we still have to wear masks etc to protect others.

Cja1956 profile image
Cja1956 in reply to Dovme

Yes, I have heard that too. Thanks.

Petsch profile image
Petsch in reply to Dovme

Ridiculous and aggravating

Cindy12 profile image
Cindy12

I have had the two jabs of the Pfizer vaccine with no problems. I have pre-fibrotic myelofibrosis Calr and on hydroxy and blood pressure medications. The procedure was very thorough and you have to wait 15 minutes after the jab to make sure there are no reactions. I hope this puts your mind at rest.

Cja1956 profile image
Cja1956 in reply to Cindy12

Very reassuring. Thanks.

Trocken profile image
Trocken in reply to Cja1956

I’ve had it too along with all of my colleagues and would like to reassure you that none of us have had any problems my reaction was the same as there’s, a sore arm, I couldn’t lift it above shoulder height for a day and a mild headache. One of my colleagues has this week tested positive for covid as as her husband who’s vulnerable, again another interesting point to raise is she’s been affected more than he has and he’s immune compromised. Like you say, there isn’t the research out but I’d seek comfort in known 1000’s upon 1000’s of people have now received the vaccine and we’re not hearing of major reactions on a big scale, it shouldn’t like the Dr your talking about had a number of underlying health conditions. The organisation of the delivery of the vaccines is fantastic. Take care and do what’s right for you, I think it’s important that we question and rationalise how we’re feeling, your not alone xx

Buggerbear profile image
Buggerbear

Hello Cindy!! Thanks for sharing the story. Just curious...was this Dr. in the UK or US? I had heard a similar story about a Dr. in FL. Thanks and good luck!

Cja1956 profile image
Cja1956 in reply to Buggerbear

Yes, Buggerbear, you’re right. It was right here in Florida. I know the hospital well because my dad was the head of endocrinology there for 40 years. Such a sad story.

Buggerbear profile image
Buggerbear in reply to Cja1956

Yes very, very sad! Thank you for the clarification!

Threelions profile image
Threelions

Definitely the right decision to have it in my opinion.As said already we all take various medications and when you take anything I guess there’s a tiny chance it might disagree with us.

Most of us have the flu vaccine each year without any problems.

My close friend is a medical professor and he’s told me their is nothing to worry about and to get it done as soon as it’s my turn👍

Cja1956 profile image
Cja1956

Thanks, Threelions. I hope you can get it soon.

Tico profile image
Tico

I can imagine your anxiety levels will have gone into overdrive upon hearing the news of the Doctor dying 2 weeks after having the vaccination. Your right in the sense that we don't know if their is going to be any long or short term effects but more importantly how long the immunity will last. The one thing they seem confident about is that they hope you will not get as seriously ill with Covid if you went on to get infected with it. They are still unsure about a lot of issues surrounding it, ie, whether you can pass it on to others. That will only be known when more data is known and unfortunatly that takes time. Thats why people have to make their own individual choice when they are invited to have the vaccine. The way the virus is spreading, it seems the unknown is better than what we do know. Good luck Cindy and keep us updated. Tina.x🤗

Cja1956 profile image
Cja1956 in reply to Tico

Thanks, Tina Everything you said is true. There are still so many unknowns about the vaccine. We don’t even know how long the effects will last. And we still have to wear masks and social distance even after we’ve had the vaccine. And plus, now there are different strains coming out. Even so, I am having it on Tuesday, if all goes well. Take care and be well.

Cindy

Wyebird profile image
Wyebird

Thank you no mention of his death to my knowledge xx

Cja1956 profile image
Cja1956 in reply to Wyebird

He was actually the ob-gyn for my friend’s daughter.

Wyebird profile image
Wyebird in reply to Wyebird

Accurate source of knowledge. Oh dear heart wrenching. We have ( the whole world has) entered the unknown. So fed up with the whole thing then I remind myself I have my pension and my house so get on with life.. So many people have lost so much.

Irishgal12 profile image
Irishgal12

I totally agree with u

lhasedoglover profile image
lhasedoglover

There is also a lot of fake news going on in the web. And it spreads like crazy....

Paul_1971 profile image
Paul_1971

In my view we have to be careful when reacting to news that someone who had the vaccine has died.

In the US for example, nearly 3 million people die each year, even in a non pandemic year.

Something like 6 million people have had the first dose already in the USA. The law of averages says someone is going to die from something other than covid who has received the vaccine.

The media, certainly in the UK, love a bad news story, so if someone does die they will be all over it like a rash spreading fear among the population if they can.

Petsch profile image
Petsch in reply to Paul_1971

You're right about that. Fake news and bad news

Wyebird profile image
Wyebird in reply to Paul_1971

Wise words

Runner999 profile image
Runner999

The vaccine is designed to stimulate an immune response to lock onto the spiky virus. Thus it seems more likely that the Dr had an undiagnosed condition.

Coincidence (as this is one case only), just like correlation, is not proof of causation

Cja1956 profile image
Cja1956 in reply to Runner999

That’s a good way to put it. Thanks.

jmctrek profile image
jmctrek

Hi Cindy. Did you receive the Pfizer Covid19 vaccine? Hoping you are doing well if you went ahead with your appointment on Tuesday.

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