Coq10 and ET: I read a post on here saying Coq1... - MPN Voice

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Coq10 and ET

Camelian profile image
10 Replies

I read a post on here saying Coq10 helps with fatigue ( I'm etjak2 + and feel fatigued on a daily basis) after reading the post I read about Coq10 on Google and it's sounds good but just wanted to check it's not going to increase platelets?? Has anyone found this?

I am currently only taking aspirin for ET however I'm taking citalopram and was wondering if it's ok to take Coq10 with citalopram?

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Camelian profile image
Camelian
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10 Replies
JackLina profile image
JackLina

Hi Camelian. I have been taking it for years and long before this was diagnosed. I really don't know the answer but I sincerely hope not. This definitely needs investigating. Where did you read it? What is the url?

Camelian profile image
Camelian in reply toJackLina

I haven't read that it increases platelets I was asking the question to make sure it's ok to take????. With regards to citalopram as I take this I was asking if anyone knows if it's ok to take coQ10 whilst taking citalopram. I'm going to ring the pharmacy and if they say it's ok I'll go and buy the COQ10 which I'm hoping will help with my fatigue.

I looked at the COQ10 yesterday in Holland and Barrett and it comes in a range of strengths 30 through to 200. Does anybody know what's recommend for helping with fatigue??

JackLina profile image
JackLina in reply toCamelian

Just one word of advice if you do decide to use it. I use Nature's Best products only due to their purity and high quality product standards. I take the all veggie 200mg. I used to take a higher dose of a different make but these have been fabulous.

This is the company owned by the person who did all the research into the benefits of coQ10 and the best standard of raw materials. I can't recommend this company highly enough. Great prices and best quality products. Hope you find the info you're looking for. P.

Camelian profile image
Camelian in reply toJackLina

hi thanks for your reply is this company based on Tunbridge Wells? I've just had a quick look on Google and found this one. The prices look pretty good even better if it's all natural products used.

How do know what's the right dose for you? Is it best to go for the higher strength 200,?

JackLina profile image
JackLina in reply toCamelian

Hi again. I've been taking it for so many years now. Previously a different make that was 300 mg but having read more about it (and Nature's Best overview about the purity), I decided to go for the lower dose because it's also veggie. I can tell it is doing a lot for my concentration etc. When I don't take it, I really know. Give it a go. I'd be surprised if it doesn't suit you. ATB. P

Anag profile image
Anag

CoQ10 got me back in shape fast. It was the 2nd best thing after the diet. It did not increase my platelettes But, I’m on Anagrelid and aspirin. Whenever I try something, i start with a smaller dosage and never change 2 variables at once. You’ll never know what caused a change for sure. Anagrelid works a bit antioxidative. Careful to take it a while after your meds. Better safe than sorry. : )

Camelian profile image
Camelian in reply toAnag

Thanks anag. I'm only on aspirin at the moment for my ET but I'm taking citalopram so I'll ask the pharmacist if it's ok to take COQ10 with citalopram I don't think it will be a problem. I'm really hoping for a little extra get up and go with the COQ10 I'm so tired most of the time even on wakening. Before diagnosis of et I put a lot of the symptoms I have down to menopause, hot flushes, mood swings, brain fog itching fatigue, migraine and more recently episodes of virtigo. Now after reading the symptoms people experience with ET I think it's probably been because of et all along. Since diagnoses and making some changes with my diet and drinking shed loads of water my headaches at least seem to have reduced but the fatigue has increased over the last few month which is why I want to try the COQ10. Fingers crossed because if I can get the fatigue under control I can start addressing some of the other symptoms. I also want to come off citalopram and I've been thinking about going onto CBD oil instead but one step at a time.

Anag profile image
Anag in reply toCamelian

Hi Cameleon, All that sounds great! Really everything. You are doing a lot and slowly, which is the key to gentle control. You will get there with the fatigue. It is really the one thing that pesters is all the most. No matter what, start with a bit and see. You can always increase later. I have studied CBD a bit. It works for so many illnesses! It is said that CBD works differently on everybody, as all natural herbs. Some need 2 drops, some 10. This is why it is so difficult to study this properly. There’s no one size fit all. That’s in my list for the future. Once you’ve tried it, please let me know how it is. Cheers.

Camelian profile image
Camelian in reply toAnag

I'm will I'm slowly coming off my other meds in order to take the oil which is a slow process but it's the best way to do it as you avoid withdrawal symptoms. I think I'll start taking the 30 strength COq10 and like you say increase gradually. I'm the world's worse for taking meds of any sort but this fatigue is at the point where I need to do something. I work full-time in a very demanding job and I need energy to do it. Thanks for all your advices.

Anag profile image
Anag in reply toCamelian

I understand your situation. This is courageous and you’re taking it step at a time. Keep good track of your development. Just a simple system that’s doable is important. Perhaps your doctor or someone can help. I’ll be praying that all goes well! Cheers!

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