I was diagnosed about six years ago with Essential Thrombocythaemia (ET) and was pretty much patted on the head, handed aspirin and told to come back every 6 months. In the last few months I have been referred to another specialist and hoping that with two new genetic tests and a bone marrow biopsy there will be some more information coming.
My question is how do people deal with the fatigue? It is absolutely killing me. I used to climb mountains and do long distance walking. And now I would rather go hungry than try and find the energy to make something to eat.
It has had a massive impact on my mental health, and my team and I are trying to address the fatigue from the mental aspect. I've been told there is literally nothing from an ET treatment POV for it though. So I am just looking to see what other people who might have this symptom do.