We are very pleased to announce that we will be holding the first MPN Voice patients’ forum in Cork, Ireland, on Saturday 18th May 2019, 10.30 am – 4.30 pm, registration from 10 am
The River Lee Hotel, Western Road, Cork, T12 X2AH, Ireland
You are welcome to attend this forum regardless of where you live in Ireland or the UK, if you are prepared to travel to attend then we will be more than happy to see you.
Programme
The programme will include talks from: Dr Clodagh Keohane, Mercy University Hospital, Cork; Dr Eibhlin Conneally, St James’ Hospital, Dublin; Professor Mary Frances McMullin, Queen’s University Hospital, Belfast; Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London, Haematology Specialist Nurses, patient stories and breakout groups for each MPN where patients can meet in smaller groups to discuss everyday challenges and swap tips and chat with other people who have the same MPN, there will also be a family and friends group, this gives your family and friends a chance to chat to others about how to help and support you and themselves.
Book to attend
You are required to book to attend this forum as we are restricted to numbers at the venue so do need to know who is attending. To book to attend please email info@mpnvoice.org.uk and include details of what MPN you have and also the name(s) of your guests and any special dietary requirements you or your guests have, i.e. gluten free, vegetarian. You are very welcome to bring family and friends with you, there is no fee to attend. Complimentary refreshments and a buffet lunch will be served during the day. PLEASE NOTE: do not request places via this post, bookings can only be accepted via email
Patient speaker or a family member/friend of a patient - would you like to give a talk at this forum?
Hearing from another patient or family member/friend how they manage and cope with their MPN and the varying symptoms that can affect daily life can be very encouraging, if you would like to share your story with others at the forum please email info@mpnvoice.org.uk with details of your talk, please include a contact telephone number, a member of our team will contact you to discuss your talk.
Venue and travel directions – can be found on the hotel’s website doylecollection.com/hotels/...
The hotel has limited onsite parking, spaces are available on a ‘first come first served’ basis and cannot be reserved, the fee for non-residents is €4.50 per hour. The nearest public car park is St Finbarr’s Q-Park, with 344 spaces.
q-park.ie/en-gb/cities/cork...
If you are able to display a poster advertising this forum you can download one here... mpnvoice.org.uk/documents/f...
