Hi my MPN family. I had an appointment with my Haemo Consultant 2 days ago and I told her of the event about 6 weeks ago when I started having problems with my speech again, mainly struggling to get the right words out and stumbling over them when I could find them. Because this was the second episode my consultant wanted me to be seen by Neurology Dept. Imagine my surprise when, the following day, I had a call offering me an appointment at the TIA clinic today. This is the second time I have been referred there for a MRI scan. The first time I was told that because I had waited before going to my doctors, it would be highly unlikely that the remnants of a TIA could be seen on the scan.
The incident I told my consultant about this time happened 6 weeks ago so I knew it was too long to see anything again. It took 2 1/2 hours to be told diddly squat.
This time though I saw a different Neurologist and he was totally dismissive. He wanted to know why I thought PV put me at a higher risk of a stroke! I told him that it was my Haemotologist Consultant who told me this and who had referred me to him today. I told him that my speech was back to normal now but, the last time this had happened, I had posted on this site and I received lots of responses from people who also went through stages of stumbling with their speech and tripping over words. To be honest I was surprised at the number of responses.
The consultant this time wanted to know why I thought PV could possibly affect speech. I asked him if he could tell me why PV affected balance, sensation in the feet, bone pain and hey ho, he couldn't answer.
What I really want now is for anyone who is experiencing problems with speech to answer my post so I can show my haematologist that I am not the only one going through this and that I am actually not going mad. So, please, if you can reply to my post I would be more than grateful. I felt an inch tall the way the Neurologist was talking to me and at one point I just got up to go home as he didn't seem a bit interested. I am hoping to go to my next Haemo appointment armed with a fistful of responses from people who experience the same thing. Thanks guys