Pain meds for PV symptoms: Has any one been told... - MPN Voice

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Pain meds for PV symptoms

Titatagg profile image
15 Replies

Has any one been told not to take Ibuprofen (NSAID) for pain relief for PV symptoms?

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Titatagg profile image
Titatagg
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15 Replies
RobPV profile image
RobPV

Yes that is right. My consultant told me to avoid them. Use paracetamol instead.

Titatagg profile image
Titatagg in reply to RobPV

I have just taken 1 as I had run out of paracetamol. I have not taken it for 8 years . I am pain free for the first time in years . I presume the risk of bleeding is increased and that is why we should not take it .

mhos61 profile image
mhos61 in reply to Titatagg

We are not supposed to take them, being on aspirin.

I took one the other week, as my joints were particularly stiff and painful. I did feel guilty, but boy, does it work!

AndW65 profile image
AndW65

Hi Titatagg, are you taking Aspirin?

Most people with P.V. take aspirin to thin the blood. I was told that if you're taking Aspirin then you shouldn't take Ibuprofen as well. I believe you'll find it on the safety sheet included with the Aspirin. I have read that I can have Paracetamol if I required extra pain relief, headaches etc

Prior to my P. V. diagnosis I was taking Nurofen as a primary pain reliever without problems but if you're unsure then consult your doctor.

Best wishes

Andy

RosemaryHarper profile image
RosemaryHarper

Yes I have been told not to use Ibuprofen

Marossi profile image
Marossi

I brought this up with my haematologist as I had also read that we shouldn’t take ibuprofen when taking aspirin. But he basically said ‘what are you talking about?’ and said it wasn’t a problem. Maybe cardioaspirin is too small a dose to be a problem?

NewBloom profile image
NewBloom

Yes, been told not to use. I think it may because of the Asprin.

Ovingite profile image
Ovingite

I think age is a factor too

Ibuprofen is not recommended for over 65s . My GP moved me off aspirin and on to Clopidogrel for blood 'thinning' and prescribed codein for pain management

John

katiewalsh profile image
katiewalsh

Hi. I was told not to take it because it’s a blood thinner.

Kari1961 profile image
Kari1961

I've also been told not to take it. But, as others have said I have taken it recently. I have a painful neck/shoulder and paracetamol doesn't touch the pain...so much so that I couldn't do my physio exercises. Within 30 minutes of taking one ibruprofen I felt relief. I'm waiting for some pain relief magnets to arrive (I've used them before and they worked) so fingers crossed they'll help again.

Ebot profile image
Ebot

I was told if I was on aspirin then to take paracetamol and not ibuprofen. However, if for some reason I have needed to take an NSAID drug then I have stopped the aspirin. Obviously you should take advice before doing this.

MCW22 profile image
MCW22

I am on clopidogrel and was told not to take ibuprofen. I get paracetamol and codeine on prescription.

Fika500 profile image
Fika500

My husband is not on aspirin but nevertheless must not take NSAIDs such as Ibuprofen due to his having low platelets -increases the risk of bleeding.

nivana profile image
nivana

Yes, I was told I can only take paracetamol and definitely non ending in 'fen'. Best wishes

Pepper2nd profile image
Pepper2nd

I took it for months for sciatica and ended up in an ambulance because of a severe nose bleed. I had to have nasal tampons inserted up my nose followed by the nose being cauterized. A night mare. I won't touch it now and just put up with the pain.

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