Greeting

[Alexander-Dzul]

Hi all. My name is joe. im new here. i just been diagnose with pv last month. nothing much i know about this illness. i just want to say that i feel very glad that there is a comunity like this. I todd i was alone.

i didnt start any treatment yeet, since ive been transfer to the gov hospital.

[susieq75]

Hi Joe, welcome to the forum, although I am sorry that you have been diagnosed with PV and find yourself here. You are most definitely not alone and you will find a lot of good information and really decent people that can support you here. They make everything about havin an MPN seem less strange and scary! I hope you get your referral to the government hospital quickly and that you get the information and treatment you might need. So again, welcome Joe. Is that your baby? So, so cute!

Susan

[mhos61]

Hi Joe,

welcome to our supportive forum. You will not feel so alone now you have found us. Look up ‘MPN Voice’ for all the up to date information on PV. If you don’t understand anything, you can always ask questions on this forum and someone will try and answer.

I hope you’re able to start the appropriate treatment soon. Are you at least on aspirin?

Mary x

[Alexander-Dzul in reply to mhos61]

Hi mary. Thank you for your concern. Yes im on aspirin now. hopefully i can start my treatment soon.

[Ebot]

Hi and welcome. You’re definitely not alone. As Mary says check out MPN Voice online. And avoid Dr Google - there’s a lot of scary misinformation out there that’s just outdated and wrong. Keep us posted. Good luck.

P.S. Seriously cute baby!

[ansaseeker]

Hi Joe, you are not alone, nor do you ever have to feel you are, this group is brilliant , and the people on it are very welcoming. Let us all know how things go, you will get support. Its great pic of you and baby.x

[Inca]

Hello Joe ,

Welcome to this exclusive club.....lots of info and help here.

Best to you and family,

[Stevesmum42]

Hi Joe. You have come to the right place for help and advice. The lovely people here are supportive and helpful.

Wishing you well. Sandy

[jillydabrat]

Hi Jo, what an adorable baby! So sorry you have been diagnosed with PV. At first you will feel a little shell shocked at the diagnosis and you will try all different websites to find answers but, believe me, you will never find a better place to find real answers from people who have the same diagnosis as you. Everyone here shares their experiences, answers questions as honestly as they can, and, in general, throw their arms around everyone for a virtual hug. Please don't Google too much as some of the information you will find is frightening and inaccurate. Hope you find what you're looking for here. Best wishes, Jill

[Aime]

Hi Jo, as others have said a big welcome and a gorgeous baby. Kindest regards Aime xx😺😺eat as healthily as you can, drink plenty of fluids and rest if you can when you need to. Take heart from the fact that a lot of people on this forum have had PV for a long time and are still here.xx. Keep posting any worries you have and you will find support and great friendship here.

[Mazcd Partner MPNVoice]

Hi Joe, and welcome to our forum, we all understand how shocked you are feeling at the moment, but as you can see, you are not alone. Best wishes, Maz