Hair loss on Interferon : Hi I have been diagnosed... - MPN Voice

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Hair loss on Interferon

Nickifoxy profile image
8 Replies

Hi I have been diagnosed with ET for about 3 years now, have been on baby aspirin and for the last 4 Months I have just started interferon injections, but have been getting quite a lot of hair loss, has anybody else experienced this?

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Nickifoxy profile image
Nickifoxy
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8 Replies
fee13 profile image
fee13

I was on the quick acting interferon 3 x per week and after year & half lost quite a lot of hair. It seems to alter the structure of it. Mine went all whispy then snapped off plus long strands would come out when washing. To help minimize I always brush from tips to roots very gently (as hair ends became very knotty & fragile), never wash hair over a tub etc (don't wash hair leaning over). I used a rosemary, thyme, marshmallow root hair spray which really helped. You'll need to Google rosemary hair rinse recipe.

Nickifoxy profile image
Nickifoxy in reply tofee13

Thankyou for your reply, yes mine is wispy and breaking too, I’ll look up the rosemary rinse recipe

MckChelly profile image
MckChelly

My hair thinned terribly on interferon. I did read that the follicle sheds the hair intermittently in cycles. Menthol shampoo stimulated regrowth. I switched from ordinary to pegylated interferon after 6 months and it improved gradually. It will grow back.

Nickifoxy profile image
Nickifoxy in reply toMckChelly

Hi I have tried the menthol shampoo too, just been reading up on this Weleda Rosemary Revitalising Hair Tonic so think I might try this as well, thankyou

Kinsale profile image
Kinsale

Hi Nickifoxy. I’ve been on pegolated interferon (Pegasys) for two years. I was steered n the direction of Aveda Invati range. It has helped stop the hair snapping off etc but be warned it’s expensive. I order it online and I wouldn’t use anything else Cheers Mark.

Nickifoxy profile image
Nickifoxy in reply toKinsale

Hi yes I’ll have a look into aveda, I’m going to try this too, just been reading up on this Weleda Rosemary Revitalising Hair Tonic Thankyou

SuET2017 profile image
SuET2017

Hi

Yes I was on interferon and had quite a lot of hair loss and other side effects. I am now on the pegalated and my hair has grown back and I have less side effects overall, and it’s only once a week, all in all much better.

Take care and hope you get it sorted. Sue

Nickifoxy profile image
Nickifoxy in reply toSuET2017

Thankyou, I have a few things to try and help so hopefully they will

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