Let's start loving one another again: I know we... - MPN Voice

MPN Voice

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Let's start loving one another again

jillydabrat profile image
32 Replies

I know we are all worried at the moment about how the virus may affect us and our loved ones. This means our nerves may be frayed and our patience pushed. All I want to say is can we all take a deep breath and go back to the loving and supporting forum we once were. Please, I miss how this place used to be.

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jillydabrat profile image
jillydabrat
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32 Replies
azaelea profile image
azaelea

Well said,Jill! We all need to be kind and understanding at this very worrying time. Take care yourself and all your family. Fran xx

wotan10 profile image
wotan10 in reply to azaelea

I too feel we all need to be kind and thoughtful.

What ever this virus is whether it was deliberate or part of karma, we are not alone, we are loved and cherished. Remember this and let us not forget to be human is to care ever hopeful.

See you are on the other side.

Aime profile image
Aime

Hi Jill, I've never stopped caring and supporting as I dont judge people. Yes we are all worried about our health and we all have other worries too, personally I understand the worry so any off days anyone may have (including me), to me are necessary for that person at that time as they cope with whatever they need to cope with. One person's way of coping is different to another's. Some people need to laugh and make jokes, others are quiet and withdrawn.

I do think the press should stop the scaremongering headlines as they are causing panic and selfish over buying of our usual weekly shop.

I think we all need to stick to the advice issued by Maz and her team and in the meantime, keep supporting and being kind to everyone. Love to you all.xxAime😻😻😻😻😻😻😻😻😻😻😻😻😻😻

jillydabrat profile image
jillydabrat in reply to Aime

Hi Aime, I am not going to comment on the scaremongering statement because I don't want to open another can of worms, just take my post as it was intended to be. I wasn't pointing the finger at anybody, I just want the group to keep supporting each other when needed, like we all used to do without people jumping on the defensive bandwagon. Hope you are keeping well

Aime profile image
Aime in reply to jillydabrat

Hi Jill, I’m blaming the press not you. That’s what I mean everyone is naturally worried and super sensitive . I don’t think anyone including yourself meant any harm, so let’s have E hugs all round and get back to what this forum is brilliant at - supporting one another. Love to all and I hope everyone keeps as well as possible.

Kindest regards Aime xx😻😻😻😻

Scottishterrier profile image
Scottishterrier in reply to Aime

NO my Friend Aime she was getting at me and all the bullying I have had since I voiced my opinion has made step back from HealthUnlocked but once corona virus is under control will be having meeting with lib dem msp and tory msp about more MPN Nurse specialists in Scotland

best wishes

Scottish Terrier

jillydabrat profile image
jillydabrat in reply to Scottishterrier

Who was getting at you?

Scottishterrier profile image
Scottishterrier in reply to jillydabrat

quite a few where giving me dogs abuse they do not know me and what i have went through in the last few years would not want to wish it on my worst enemy yes the bullies have got what they wanted do not want to name names but that is me finished will continue to work with Nona and Maz when they come to my home town helping and hoping a consultant that looked after me and was close to Maz helping at forums

best wishes Scottish Terrier grrr

jillydabrat profile image
jillydabrat in reply to Scottishterrier

Sorry you feel bullied. I have not seen evidence of it but then when I have seen some of the snippy comments lately I have chose not to read them. All I wanted was for everyone to stop having a go at each other’s comments but it seems that is to much to ask. Everybody has to much stress in their lives at the moment without adding to it on here so let’s just lighten up shall we.

Scottishterrier profile image
Scottishterrier in reply to jillydabrat

no can do thanks anyway

jillydabrat profile image
jillydabrat in reply to Scottishterrier

You keep saying you are stepping away from the forum because you feel like you are being bullied yet you still want to comment and try and cause problems when this post was asking people to just lighten up and be nice to one another. If you cant do this then please refrain from commenting on my post as it’s obvious you only want to stir up bad feelings. If you want to step away from the forum like you keep threatening then please just do it because you are being very nasty and negative and nobody needs the added distress at the moment. I asked that we all try and go back to the friendly forum we had before but you just want to keep stirring up bad feelings.

Aime profile image
Aime in reply to jillydabrat

Come on guys everyone is entitled to contribute and be supported on this forum. Let's leave the past behind and concentrate on what we are facing at the moment. Think everyone needs to chill. Kindness should be the word of the day, not nasty. Kindest regards Aime xx😻😻

Aquinas profile image
Aquinas in reply to jillydabrat

Just want to say, without wishing to stir up anything, that I personally find your posts always positive and helpful and am very grateful to you. May God Bless us all.

Aime profile image
Aime in reply to Scottishterrier

Hi I'm sorry you've been bullied and I'm sorry if I've stirred things up again. It's great what you are doing about mpn nurses and many in Scotland will be grateful for that.

Take care , E hugs sent Aime xx❤😻😻

Tico profile image
Tico in reply to Aime

Amie. I re-read the replies to the original post and at no time was Scottishterrier bullied. Its as Hunter says, in difficult times people can percieve that. I personally felt insulted and i'm sure many others who laughed at a few jokes in times of stress and anxiety who were called 'sick and disgusting were too. Those words were just too strong for this community who have always been very supportive to all regardless. Jill did try and make in-roads with Scottishterrier and it was rejected emphatically, I applaud jill for trying. You Amie as always talk common sense and you are the voice of reason. People do need to come together as people out there do unspeakable things,ie, ripping had sanitizers off cancer and kids wards and in my area a dinner lady being verbally attacked and spat at because of a false rumour about a certain school. Let us all as a brilliant forum support Maz and each other through this. Love to all, tina♥️

jillydabrat profile image
jillydabrat in reply to Tico

Thank you so much for the support Tina. I wanted so much for the loving community we had to come back. The stress we are all under can make us say some nasty things and, I too, thought sick and disgusting was way to strong but I still held out the olive branch only to have it poked back in my eye. Everyone knows I love them and support them but some people don’t want to interact with anybody, taking offence where non was implied or attended. I thank you, and everyone else, for your support at this time. I think we all need a big MPN family squeeze xxxx

jillydabrat profile image
jillydabrat in reply to Aime

You haven’t done anything wrong Aime. Nobody could ever accuse you of being a bully because you are the polar opposite. Just take what has been said with a pinch of salt my lovely x

Mostew profile image
Mostew in reply to Aime

Xx

Mostew profile image
Mostew

Xx

hunter5582 profile image
hunter5582

Not to worry Jilly - we certainly still love you. And each other. Like most families, this MPN family can get a bit out-of-sorts when stressed, but that is just human nature. None of us are at our best when we are anxious and worried.

Your note is a good reminder for all of us to remember to support each other in trying times. We are stronger when we stand beside each other, giving support, understanding and acceptance. There is no reason to pass judgement on each other as we are each just doing the best we can to manage the situation we find ourselves in. I do think that people also tend to get more sensitive to perceived criticism when stressed, so lets all tone it down a bit and help each other cope.

Be well all.

jillydabrat profile image
jillydabrat in reply to hunter5582

Thank you my friend, your support is, and always will be appreciated and very much welcomed x

Aquinas profile image
Aquinas in reply to hunter5582

Here, hear !Well said.

lindyloulou profile image
lindyloulou

Ohhhh lets just stop, take a breath, there are bigger things going on just now. The past is past, the future is what matters. Jillydabrat well said, Scottishterrier, people are trying to support each other that includes you. Xx

Aime profile image
Aime in reply to lindyloulou

Totally agree with you. Kindest regards Aime xx😻😻

Bridie123 profile image
Bridie123

Yes, E hugs to all. It is human nature too have a reaction, but it is how you carry on. 🤗

MaggieSylvie profile image
MaggieSylvie

When we write posts on forums we have to remember that the people who read them are reading only words. There are no other clues to meaning such as tone of voice or facial expressions. In that respect it is harder than speaking on the phone, where we can't see the other person's face. So please, before we click Reply, can we all read what we've written, and edit where necessary, to ensure that we have written what we mean to say. The same goes for reading the posts of other people. If we only skim someone's post we may react to what we think they've said, not what they have actually written and mean. Let's remember not only to look after our health but to look after how we "put" things.

Aquinas profile image
Aquinas in reply to MaggieSylvie

An excellent point, Maggie. Absolutely spot on.

Aquinas profile image
Aquinas

Wise and apt words, jillydabrat. Love keeps hearts and minds open. Bitter words close them. I read many years ago that, " Arguments produce heat, not light."

jillydabrat profile image
jillydabrat in reply to Aquinas

Perfect way to put it my lovely xxxx

Aquinas profile image
Aquinas

Thank you.

Loubprv profile image
LoubprvVolunteer

Absolutely I’m with you. All the way. xxx

carlyjo profile image
carlyjo

Thanks jillydabrat for reminding us to keep our hearts open.🙏May we all keep our hearts open in these trying times 💙💛🙏

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