I haven't been posting for a long time.
I was diagnosed with High risk myelofibrosis/low risk Mds-5q last September.I have been on Rux until April ,but have been having 2 bags blood every 5-6 weeks,RBC at on average 74.
My haematolgist and I have got me off Rux( it's not been good with me,had a lot of chest infections and breathlessness).I also have bronchiectasis too which is a difficult scenario for me and my haemo to cope with.
Now I have begun Lenalidomide,and wondered if there is anyone on this drug,and how they find it?
Kind Regards Lynda.