Hi
Yet again I would love some advice. I was diagnosed with ET 9 years ago at the age of 58. Until recently I was on 500 mg Hydra daily and aspirin. Then my hct started to rise and at my haemo appointment today was 4.9 even tho I have been on 1000 mg hydrea on Friday Saturday and Sunday for some months. Anyway I had to have a venosection today for the first time and my haematologist told me that I have now changed to PV.
I am wondering if others have experienced this as I am worried about things deteriorating and prognosis
I would love to hear from others in this situation
Thanks. Margo