Im new to this forum so hello!
I was diagnosed with ET Jack2 mutation in October 17. It has been a huge journey as didnt know anything about condition or meds. My count was 925 and is now 570 as been on Hydroxycarbamide 500mg daily since december but now on 1000mg for 2 days and 500mg for 5. Only side effects Ive had is painful teeth which I grind so had mouth guard made and sore mouth and ulcers. Also had horrendous headaches on 1000mg.
Worried about Dr changing medication and what to and also if any support groups around stafford