Hi, a few weeks ago I was diagnosed with ET (JAK 2 positive). This was a huge shock, particularly as it's so rare! I started on 500mg of Hydroxycarbamide but platelets still high so it's been upped to 1000mg daily.
Only side affect is that I feel very tired, I'm ok all the time I'm doing stuff but once I stop I just want to sleep. I just wondered if anyone else has this symptom. The consultant told me it's a side affect of the drug and the condition.
One other thing, which isn't really important but slightly confusing, is the hospital don't class it as a cancer, but having read up about it, it was reclassified as a blood cancer by the WHO a few years ago. Has anyone else been told this as well? Many thanks