Dizzy spell

[Solitairebtb]

Hi all, need some advice. I'm newly diagnosed, ET, Jak2+ just had BMB on Tuesday so waiting on all final rEsults before going on any meds etc

I'm at work and just had a really strange dizzy spell, actually thought I was going to collapse but got to a chair in time. Didn't last long, still feel a bit dizzy but seem to be able to walk ok. Should I be concerned or is it likely it has nothing to do with condition?

TIA

Tamzin

[mhos61]

Hi Tamzin,

Welcome to our forum.

Like you I have ET (jak2+). Prior to my diagnosis I did suffer from the odd bout of momentarily dizziness/disorientation. However, I have had no further episodes and I put this down to taking aspirin. I have come to this conclusion because my GP put me on aspirin until I saw a haematologist. During this time I had no dizzy spells. It was a further seven months before my haematologist put me on Hydrea, so in my opinion it is the aspirin that has helped.

I would suggest that you see your GP to discuss this 'strange dizzy spell' that you have experienced.

Mary x

[Solitairebtb in reply to mhos61]

Thanks Mary I appreciate your response. My arm is still a bit weird but I think all is ok. I agree from what I have read a few things will resolve themselves once I get some aspirin into my system.

X

[Ebot]

Hi

Hope you're feeling better now. Clearly if you're unwell you'd best be checked out by your Doc - for reassurance if nothing else. I just wanted to say that first, I always find it hard to know whether any symptoms I'm experiencing are down to the ET / PV or something entirely different. I suspect that's something many others will grapple with too. I try not to lump everything in with the MPN - maybe I am just tired / dehydrated / exhausted / fluey in the same way as any 'normal' person would be! And second, the time around diagnosis / change of diagnosis can be incredibly stressful and the effects of the shock, uncertainty and anxiety shouldn't be underestimated. I recall experiencing all kinds of things when I was first diagnosed which then of course all got checked out - endless tests. In retrospect I think some of them were not related to the disease but were the result of being told I had it! Good luck and take care of yourself. Xx

[catkinspolymer]

Hi Tamzin,

I used to get strange dizzy spells when my platelets were very high over 2000 or 2 million on the US scale but they stopped when the blood counts normalised after medication

yours town crier ET since 1986 and still going HU 12 tablets aweek plus baby aspirin

[Mazcd Partner MPNVoice]

Hi Tamzin, welcome to the forum. Dizziness is one of the symptoms of MPNs, I myself have ET and the dizzy spells were what led to me being diagnosed with ET. They are much better since I have been on Hydroxycarbamide, though I do still get them now and again. However, having said that, it is always best to speak to your GP, just to make sure that the dizzy spell you had is not an indication of something else going on, it can be very easy for us to put down various symptoms to our MPNs, and then ignore something that could possibly need treating. Hope you feel better soon, I know how you feel, it is not a nice sensation at all. Maz

[light]

Hi Tia, yes, like you I had and still having on regular basis and regardless that my platelets are under control of medication/treatment I still have them. Sometimes they are very strong and sometimes not so but they are present. Doc's checked and checked and they don't understand why is on going dizzy spells.

Wishing you well

[Superwoman]

Hi Tamzin, yes this is one of the symptoms I had before I was told I had ET four and half years ago now, I take Hydroxycarbamide daily two Sat and Sun, plus enteric coated Asprin, I still get the occasional dizzy spell even now, but they soon past just a bit annoying really especially if I am out and about. But if you are worried speak with your specialist or GP for reassurance or maybe to get some more tests don, but think it is all tied in with the ET.

Jean

[fee13]

I'm a bit concerned with your comment about your arm feeling a bit weird, what are the symptoms? This along with your dizzy spells should be checked out by your Doctor.

I had frequent dizzy spells and light headedness which subsided slightly with aspirin just over a year ago but in the last couple of weeks they have become more frequent again even though my platelets are "high normal" and I'm still drinking the same amount of fluids.

Best of luck 🙂

[Solitairebtb]

Hi everyone, thank you so much for your comments. After that day I haven't had any other issues and will see my Haematologist this Friday so will hopefully be a bit better informed on the BMB, ultra sounds etc. once again I really appreciate the support. X